Mental Health and Citizenship

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Mental Health and Citizenship IDRC Project Number: 104518-014 Country/Region: Brazil (São Paulo, Rio de Janeiro, Bahia, Ceará, Rio Grande do Sul) and Canada Full Name of Research Institution: Universidade Estadual de Campinas – UNICAMP (Campinas State University) Address of Research Institution: Faculdade de Ciências Médicas - Universidade Estadual de Campinas. R. Tessália Vieira de Camargo, 126. Cidade Universitária “Zeferino Vaz” CEP: 13083-887. Campinas, SP, Brasil. Name(s) of Researchers/Members of Brazilian Research Team: (see full team in appendix 1) 1.

Rosana Onocko-Campos (State University of Campinas) - [email protected]

2.

Eduardo Passos (Fluminense Federal University) - [email protected]

3.

Octavio D. de Serpa Junior (Federal University of Rio de Janeiro – UFRJ) [email protected]

4. Analice de Lima Palombini (Federal Univeristy of Rio Grande do Sul - UFRGS) [email protected]

5. 6.

Erotildes Maria Leal (Federal University of Rio de Janeiro – UFRJ) - [email protected] Maria Salete Bessa Jorge (State University of Ceará – UECE) -

[email protected]

Contact Information of Researcher/Research Team members: Rosana Onocko-Campos. Universidade Estadual de Campinas, Faculdade de Ciências Médicas, Departamento de Saúde Coletiva. Campinas-SP, Brasil. Phone: (+55) (19) 3521- 9098 Email: [email protected] This report is presented as received from project recipient(s). It has not been subjected to peer review or other review processes. This work is used with the permission of Rosana Onocko-Campos Copyright 2015, Rosana Onocko-Campos. Keywords: citizenship, mental health, health services, qualitative research, participative investigation 1

i) Basic Project Information

The Mental Health and Citizenship program (MHC) was funded through the International Community-University Research Alliance (ICURA-MHC) initiative by IDRC and the Social Sciences and Humanities Research Council. The MHC program is a collaboration between research groups and stakeholders in Brazil and Canada who are united to combat the stigma related to mental illnesses and to advance associated health services and community and academic research. The overarching objective of this International Community-University Research Alliance project was to investigate mental health service models in Brazil and Canada, to employ those findings to influence academic and policy debates, and to contribute to training for health care providers and students. During five years, researchers, students, mental healthcare users and providers developed a wide range of actions that included scientific research and various interventions. Collaboration between academic and non-academic partners was supported through a governance model that sought inclusion and consensus. Moreover, the research program employed participative and inclusive methodologies. The training of researchers (Master’s, PhD and post-doctoral students) in this distinguished scientific environment contributed to the long-term sustainability of this investigative strategy. The active participation of users in the research process (from the formulation of questions to the evaluation of sub-projects to be financed) was pioneering and unprecedented in Brazil. This project was implemented in Canada and Brazil and supported comparative research and exchanges between the two countries. This report accounts for activities and results emerging from the IDRC grant, and therefore focusses on work led by Brazilian researchers. That work, led by Canadian colleagues and funded through a SSHRC grant, is only discussed in relation to comparative research projects. ii) The Research Problem The ICURA-MHC project was born from the gathering of various social actors

who all have a connection to the area of mental health and citizenship. Although from very distant and different countries, partners in Brazil and Quebec (Canada) have

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experiences, conceptions and practices in common relating to psychiatric illness and how to face it. The Brazilian Psychiatric Reform, initiated in the 1980s worked toward the paradigmatic transition away from sole reliance on psychiatric hospitals (a treatment space that takes responsibility for the entire complexity of psychic suffering, Amarante, 1995) toward the construction of a healthcare network that involves institutional and community support. In this manner, the expanded model of care established on Brazilian soil, and which respects the collective bonds between the subjects, represents an important step in the direction of a sociocultural transformation that encourages social movement and the integration of the subjects (Amarante, 1999). Internationally, Goffman pointed out the stigma faced by users receiving a psychiatric diagnosis, which can be reinforced by care proposals that segregate the subject from his or her environment and everyday social relations (Goffman, 1974). Italian psychiatry, which had significant influence on the Brazilian Psychiatric Reform, envisioned building another place for “madness” within the social body, through the guarantee of rights, a restructuring of the logic of action and health services, and efforts towards the constant process of deinstitutionalization (Basaglia, 1985). In this sense, Rotelli pointed out that (1990) “the practical process-critical institutions and redirecting services, energies and knowledge, strategies and interventions towards this so different object” (p. 90) includes the set of administrative, scientific, regulatory and disciplinary apparatuses. In other words, the aim was to get perspectives on insanity to transcend madness as unreason or error, as denounced by Foucault (1979). In the Brazilian context, Pitta (1996) discussed the concept of psychosocial rehabilitation and, borrowing from Saraceno (1996), conceiving the exercise of citizenship and collective contracting as strategies for the construction of other social places for psychiatric patients. Yasui (2006) and Lima and Yasui (2014) pointed to the possibility of shaping new relations between users and the network, and to the importance of building new forms of subjectification. Nicácio (2003), when discussing the experience of transformation of mental health assistance, brings the effects of subjectification produced on users due to the change to the condition of freedom to the fore. The subject’s gaze on the world changes, as does the world’s gaze upon the subject.

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The ICURA-MHC project produced knowledge that deepens our understanding of issues relating to people living with mental health problems, that contributes insight on matters concerning scientific and professional practice and that, with regard to mental health policy, can allow for a better quality of life and the full exercise of citizenship. The project is divided into three main areas: research, training and social innovation. iii) Objectives Project Objectives The overarching objective of this International Community-University Research Alliance project is to investigate mental health service models in Brazil and Canada, to use the findings to inform related academic and policy debates, and to give training for health care providers and students. Specific objectives include: 1. To develop an academic and professional alliance among Canadian and Brazilian partners that supports and sustains research, training and knowledge exchange; 2. To conduct research on i) the realities of people living with mental health problems; ii) the institutional environment and organization of mental health services; and, iii) the processes and effects of participation by users in the public or community sector (e.g., associations of users of mental health services); 3. To build capacity by i) developing new curricula, ii) training new researchers, iii) educating users, and iv) supporting professional development that builds the skills and understanding in ways to improve services and the participation of users of mental health services; and 4. To promote the exchange of knowledge and research findings to strengthen community leadership, and to inform policy options for improving mental health service provision. iv) Methodology

Multiple inclusions of stakeholders

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The partnership formation of the ICURA-MHC project was conceived to promote a rapprochement between community-based mental health services and academic research. To give consistency to the proposal, we chose a working methodology based on participatory processes that, shared and more democratic, produced knowledge that differs from traditional knowledge, namely in that it is more complex and comprises the inclusion of several groups of interest. On the Brazilian side, we highlighted the participation of users linked to FLOURISH (Association Blooming Life of Family, Friends and Users of Mental health services of Campinas), which is a community association of users and workers of mental health services of Campinas city, and researchers from the Group “Public Health and Mental Health: Interfaces” from the State University of Campinas (UNICAMP) as well as researchers from Fluminense Federal University (UFF), Federal University of Rio de Janeiro (UFRJ), Federal University of Rio Grande do Sul (UFRGS), State University of Ceará (UECE) and the Federal University of São Paulo (UNIFESP). These partners have built community participation projects that involve the mobilization and reaffirmation of the rights of mental healthcare users. On the Canadian side, the Université de Montréal and various other academic partners have created a similar mobilization process.

Governance structure The governance structure of ICURA-MHC was designed to achieve the following goals: promote scientific quality, social relevance and ethical commitment, founded and based on a series of principles. These are: (1) the direct participation of concerned persons (persons who live or have lived with mental health problems); (2) an active and equal partnership between environments and different stakeholders, based on recognition of the plurality of knowledge and experience; (3) sufficient flexibility so that the programming of activities considers the diversity of its members. Basically, the assessment conduct of the effectiveness of our governance structure is centred on these three principles. The ICURA-MHC governance was structured in three main bodies. In Brazil and Canada, there were the University and Community, and the Citizen Committees, which guarantees the inclusion and active participation of people living with mental health 5

problems, broadly speaking, within the Alliance’s guidelines. In Brazil, the team created a Steering Committee composed of researchers from the different university researchers involved in the project, representatives of the practices, members of families, users and public authorities (Ministry of Health). In Quebec, coordination-related functions were discussed at national meetings. In this context, the creation of a Coordinating Committee, as originally planned, was not considered necessary. In Brazil, the creation of the Citizen Committee presented special challenges, since the experiences of participation of service users are less developed in Brazilian society. The modalities of support for Citizen Committees were different in each location. Levels of articulation of the teams One of the major challenges was the integration and communication among participants. Some devices were created to perform this integration, which was organized into three levels. 1) The first level concerns the various fields and research groups that develop research and actions in each country. In Brazil, seven research groups are involved: Interfaces Group-Campinas (Unicamp), FLOURISH Group–Campinas, groups of Rio de Janeiro (UFRJ and UFF), Rio Grande do Sul (UFRGS), Santos (UNIFESP) and Fortaleza (UECE). Each of these groups met weekly for follow-up, work monitoring and decision-making in their respective cities, which in many cases became fields of the several investigations. During these meetings, minutes were produced with key information that was later used for the preparation of reports, bulletins and, as survey data on ICURA-MHC. These fields have maintained informal communications on a regular basis and often took the initiative to bring researchers together and schedule meetings between them. There was also communication between the researchers at each university among themselves and with students under their guidance, and researchers from some universities often supervised dissertations and theses at other universities. Exchanges between the fields in various modalities were encouraged. These professors and students in training, affiliated to different institutions, contributed significantly to communication

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between these institutions, helping the smooth running of the research while having their education enriched by the exchange of knowledge. In one of the many pieces of research, which developed indicators for Psychosocial Attention Centres, a blog and a web page were created to make communication among participants possible and to disseminate experiences. The web page provides online classes on video, allowing students from different locations to access their content (http://indicadorescaps.blogspot.com.br/) 2) The second level of articulation was related to meetings called “Multicentre,” which had a pre-set monthly or bi-monthly calendar, where representatives from all fields gathered to exchange information and make collective decisions. These were very important occasions for group processes to take place, as all participants were represented, had specific duties and the task of relaying the experiences and information to team members who did not attend the meeting. These meetings gathered around an average of 30 to 50 people, who comprised the core of participatory articulation in the ICURA-MHC project. During these meetings, gatherings of the Steering Committee and Citizen Committee were also held and served to operationalize the evaluative processes. The meetings took place monthly from 2009 to 2012, bimonthly in 2012, every six months in 2013, and in a single last meeting in 2014, summing up a total of 40 sessions. Each time, there was intense partnership and sharing in the atmosphere. Nevertheless, there were, especially in the beginning, while defining operational details of the larger researches, also moments of controversy and some conflict (Onocko-Campos, 2011). In all cases, it was the ethical-political guidelines that helped overcome differences and maintain a healthy methodological and theoretical diversity. 3) The third level of articulation concerned the communication between Brazil and Quebec (Canada). There were several devices that facilitated this approach: A- Director Committee Meetings Brazil-Quebec (Canada) (via Skype) – There was a frequent and ongoing contact between the directors of the two countries to coordinate and integrate actions, make settlements, establish timelines and solve problems of every kind. Decisions made by the directors were always based on prior 7

consultation of the collective about emerging or urgent demands, as well as those reported later. B- Brazil-Canada Video-conferencing: Video-conferencing was part of annual planning at ICURA-MHC and constituted key moments of the process. In the sessions, the teams from each country made a great effort to synthesize information and exchange within a limited time. The agendas of these meetings, although varied, always presented updates on cross-cutting themes, research and discussion on the particularities of mental healthcare in both countries. It is important to point out that the video-conferencing option was a change from the initial proposal, which provided international meetings among the partners. After reassessing our plans, we opted for more frequent national and regional meetings and international discussions via video-conference. This helped us achieve one of the most ambitious goals of the ICURA-MHC, which is the real integration and comparative reflection on shared challenges. The video-conferences consumed a large part of our budget but allowed for the participation of a much greater number of people than if we had held only meetings. In the end, during those face-to-face meetings, we all had the feeling that we had met a long time ago. Some sessions ended to the sound of local music, played by the members of ICURA-MHC here and there. C-bi-monthly newsletter: Every two months, the MHC website was updated with information of the most important events in both countries and in the various fields of research. It was a bilingual publication (Portuguese and French) and was made available on the website. This was a very powerful strategy for maintaining our articulation, but also required a lot of energy for its permanent updating. In the last year of the project, said updates were not done, and exchanges took place through the other devices listed. D-Website: provides all information pertaining to the project ICURA-MHC. It also has bilingual presentation. There was space on the site for several types of outputs from ICURA-MHC members (documentary, cultural, artistic testimonies, films, etc.). There was also room for academic and/or artistic productions (painting, drawing, poetry) of the members of the ICURA-MHC. There are also links to the blog designed during the trip undertaken by Brazilian users in Canada. http://youtu.be/30k4Ee52PLk

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E- Visit Exchanges: Visits of the Canadian Steering Committee members to Brazil were carried out and vice versa. A doctoral student from Brazil did an internship at Université de Montréal in the first half of 2010, and a Brazilian student is still doing their PhD at Université de Montréal. Two Brazilian psychiatrists stayed for a year at the Université de Montréal, one as a post-doctorate fellow and the other in the process of completing his split-site doctoral program. A PhD student from the Université de Montréal made their split-site internship in Campinas, and another in Rio de Janeiro. In addition, a group of Brazilian mental health users conducted a study visit to Canada, and a group of users from Canada visited Brazil and participated in the closing seminar. These exchanges deepened our respective understanding of each others’ context, strengthened comparative research, and facilitated communication between both groups.

A participative and inclusive methodology The knowledge and practice exchanges among the various stakeholders were the core of the ICURA-MHC project and were featured in all activities. This approach furthered our goal of co-constructing knowledge. This meant operating with a particular conception of research, namely one that brought significant changes to the researchers themselves, as reported by themselves during focus group discussions conducted as part of our mid-term review (Onocko-Campos, 2011). The ICURA-MHC work team training also involved bringing researchers together. Despite sharing relatively similar ethical and political stances and having the option to conduct qualitative research, concepts and theoretical affiliations were diverse among them. Numerous traditions were present, such as hermeneutics, phenomenology, social psychology and critical theory, among others. Similarly, we had several areas of knowledge such as public health, medicine (psychiatry), psychology, psychoanalysis, social sciences, social work, pharmacy and (occupational) therapy. Participation in the project has brought these traditions closer and allowed each researcher to explore other areas of knowledge, expand dialogue and question the logic of their own specialties. Considerable emphasis was put on ‘collective health’, on the Brazilian side, a discipline that came into being at the beginning of the 1970s in Brazil. Collective health distinguishes itself from traditional public health by its close contact with the social sciences, especially sociology and anthropology, and by the incorporation of concepts and contents of these disciplines. 9

We identified that the appreciation of the participatory aspects, which in certain ways have structured the ICURA-MHC project, worked as a transversal element to foster dialogue with pre-existing traditions and methodologies. “By admitting an ethicalpolitical position of ensuring the participation of different actors in the various stages of the research, we were summoned to the creation of reflection spaces and also of material feedback drawn up during the smaller researches, with the goal of involving interest groups in highlighted issues and together expand the knowledge through the research process.” (Onocko-Campos, 2011). The first transformation we noticed was the destabilization of the places occupied by each actor within the research landscape. The opening of spaces for participation gradually introduced new transformations that produced changes in different fields. Most activities were in conducted in groups, which improved collaboration. To the extent that participants realized that their suggestions were heard and that they possessed power, they empowered themselves and felt free to participate. The characteristics or principles of the ICURA-MHC project also influenced the design and methodology of the research. To maintain epistemological and methodological coherence, it was necessary to create and implement changes to the design structure of the research. “We hope to be able to show how the development of participatory strategies obliges us to produce some changes to the classical form to operate research, not due to not knowing their technical assumptions, however to fit the new ethical and methodological issues arising” (Onocko Campos, 2011). It is interesting to think about the importance of research design in the production of research results. When conducting a study seeking to analyze power relations, from a plan and a methodology that value participation and horizontality, we obtain different results than in a study where there is a vertical relationship between researchers and the researched. Our experiment with this methodological radicalism and its effects was a great learning experience and – at the same time – the biggest challenge of the ICURA-MHC project. Another interesting aspect is connected to some kind of weakening identity, associated to the proposed changes, which caused “strangeness” in the conceptions of the various actors. In the ICURA-MHC experience, these barriers passed through the opening and recognition of others. This otherness is no longer the object of study, but part of the research, a mobilization that produces horizontality among interpersonal relationships 10

and causes discomfort for the researchers in the sense that the boundaries between madness and mental sanity become blurred. We must not forget that our topic is mental health, and one of the most effective defense mechanisms for differentiating oneself from madness is dissociation and differentiation. At the time of writing the text with the users, for example, we began proposing that they report about their experience of working as researchers, and then one of them asked “and you, how is it to work with us?” This intervention completely changed the course of our work, for we were able to report a joint experience that was not based on analyzing the experience of others. There was consistency that we kept “the hard way” proposing a project (EXPERIENCE) to deconstruct the disease schizophrenia, another project (GAM) to deconstruct the treatment, and a methodology that questioned entrenched positions between the researcher and the researched. We think that, despite the resistance that arose, the group managed to turn distress into production and invention. Gradually, it became clear that the ICURA-MHC process was a collective construction that transcended the traditional theoretical and methodological model options. An example of this can be found in collective productions, among which we highlight the joint writing between researchers and users of an article about this process, forthcoming at the moment (A60). Within the ICURA-MHC project, different spaces opened new opportunities for the training of different members. Thus, the Citizen Committee members in Canada and in Brazil participated actively in the process of evaluating specific research projects that were submitted to the Alliance for its funding. More broadly, the meetings of the members allowed to share knowledge and experience and to work toward the co-construction of joint research perspectives. In addition, the formative assessment of specific research projects created very favourable conditions for the development and construction of working partnerships. The Brazil team represented 18 professors from different universities, 6 postdoctoral students, 14 PhD students, 29 master’s students, 24 residency students, 21 undergraduate students and 47 other collaborators (users and professionals from the public health system). The complete list of project members can be found in Appendix 1: Table II – Working Team. The list of students (paid and unpaid) at Brazilian and Canadian universities can be found in Appendix 2: Table III – Students Total.

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v) Project results The main activities carried out in Brazil are larger research projects and constitute community and users’ interventions that focused on specific issues. In addition to these planned projects, members of the MHC team developed their own projects, funded through other means that contributed to the growth of the network and its impact. Therefore, the network generated synergistic projects that were adjusted to local interests and priorities. This dynamic was evident in the GAM research project, which is discussed below. The list of activities, including each of the project-specific objectives and outputs are detailed in Appendix 3: Table IV – Project Activities. The complete list of outputs can be found in Appendix 4: Bibliography Large Research Projects (Cross-cutting) 1. Mental Health Evaluative Research: Indicators for Monitoring and Evaluation of the Psychosocial Care Centers type III (CAPS III) of the State of São Paulo. This research aimed at developing, implementing and monitoring a system of evaluation for CAPS III in the State of São Paulo. For project feasibility, other than funding through IDRC, additional funding was approved from FAPESP, a Brazilian public funding agency. We used a constructivist and interpretive paradigm for our methodology and combined qualitative and participatory approaches. Representatives of the various sectors involved were included, which categorized our investigation in the so-called fourth generation evaluation approaches. The participatory construction of evaluation issues occur within capacity-building in evaluation, in which participate two representatives of each of the 25 CAPS type III in São Paulo State. The team created an instrument composed of 16 indicators that have been validated by the teams and other stakeholders involved (mental health workers, users and managers). Such an instrument allows evaluation and comparison between different CAPS centres. The instrument was presented to government authorities at the federal, state and municipal levels, in addition to having passed through the qualification process of representatives of all services, which were suitable for its immediate use. This research proposed a fairly in-depth discussion regarding the “scientific evidence” and a critique of the traditional model of science (Campos et al., 2013).

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Notable Results: a) Regarding Primary Care: The incorporation of the mental health actions in primary care reference teams as well as diversification of therapeutic measures were observed. Matrix support was considered a powerful tool for Primary Care, regarding definition of workflows, qualifying primary care teams and promoting joint and shared care. Community health agents also have a strategic role in identifying potential benefits and listening more closely to the population’s needs. Health promotion practices are not yet consolidated. When professionals develop external activities, outside the health facilities, the users acknowledge and occupy these new spaces, allowing new interventions that differ from other traditional symptom-remission approaches. b) Regarding the CAPS: In the CAPS report, the users expressed a desire for effective changes in their lives, especially in their relationships with their disorders and the construction of new meanings for the treatment. We also recognized different conceptions of crisis and a strong emphasis from the professionals regarding the development of user autonomy. We also identified difficulties in the integration of CAPS and other regular health services, which creates a risk for this new service to reproduce new types of social isolation practices. c) Regarding the evaluation process: This participative approach proved effective for guaranteeing the contribution of multiple stakeholders at various levels in the process (such as definition of issues, pre-test indicators and data analysis). However, the adoption of the final instrument by the local health management as a regular evaluation tool did not happen, despite the good reception the instrument received from users, workers and managers. Important Publications: 15 published papers (A3, A5, A8, A11, A13, A15, A33, A37, A39, A42, A45, A47, A48, A49, A52). 02 conference papers (C73, C38) 02 books chapters (E6, E8). 06 theses (F10, F11, F17, F18, F21, F35) (see appendix 4 for full references)

2. Gaining Autonomy with my Medication Guide (GAM) This was a participatory and evaluative study focusing on psychosocial care centres (CAPS) in three Brazilian cities and involving four public universities. It was one of the 13

ICURA-MHC flagships and one of the crucial points of integration and exchanges with Canadian partners. The objectives were to: a) translate, adapt and test, in CAPS (Rio de Janeiro/RJ, Novo Hamburgo/RS and Campinas/SP) a personal guide for autonomous medication management, an instrument developed in Canada for patients with severe mental disorders; and b) assess the impact of this instrument in the training of mental health professionals (psychiatrists and non-medical professionals). Stakeholders included users, workers and managers. The inclusion of psychiatry residents and multiprofessional mental health residents in those activities intended to evaluate the GAM guide as a tool for mental health training. We used a constructivist and interpretive paradigm, inserted into the qualitative approaches. As a result, the personal guide of autonomous medication management (GGAM) was adapted and validated for the Brazilian context. In addition, innovative professional training for public mental health services was developed. These trainees were able to experience the value of the users’ experience and its relationship with medication use. A second phase of research, undertaken with people who, in the role of residents and/or workers, used the Brazilian version of the GAM guide, has enabled the development of the guide for GAM group moderators. This material aims to contribute to the dissemination of the GAM strategy throughout Brazil and has been used in various locations across the country at variable scales: by professionals of basic health units in the Northeast up to full state-wide application by the State Department of Health in Rio Grande do Sul. There, some 10,000 GAM guides were distributed to all the health units and the health authority hired a consultant to assist its implementation. Both guides are available for free download at: http://www.fcm.unicamp.br/fcm/laboratorio-saudecoletiva-e-saude-mental-interfaces. GAM research discussed the relations between users and health professionals, mainly psychiatrists, through questioning the role of medication from the users’ point of view. The GAM project had a great impact on the public services where they were deployed (see appendix 4 – section k for details). This research also had support from Brazilian research funding agencies (CNPq), which complemented IDRC resources and contributed to the wider rollout of the work through the following subprojects: 2.1 Autonomy and human rights: autonomous medication management guide validation (GAM)

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This project sought to examine how the investigation of the experiences of psychoactive drugs users and mental health professionals could evaluate and transform their dialogue in order to enhance the autonomy and human rights of patients. The present research accompanied the GAM-BR project in its validation stage of the GAM guide. From data obtained in the first stage of research, we found the need for a specific validation methodology for the GAM-BR Guide. Thus, the research “autonomy and human rights: GGAM validation” validated the GAM-BR Guide using a methodology that considered the experience of participants and the effects of the instrument in relation to the discussed topics. The project team involved 4 undergraduate students, 3 doctoral students and 2 master’s students in this project, which received additional financing from FAPERJ. Important publications: 15 published papers (A10, A12, A16, A19, A20, A21, A22, A24, A25, A26, A28, A38, A41, A51, A56). 26 conference papers (C12, C17, C18, C19, C21, C22, C23, C24, C25, C27, C35, C36, C39, C41, C42, C43, C52, C55, C56, C57, C58, C65, C67, C77, C78, C81). 04 Book Chapters (E2, E3, E4, E7). 06 Theses (F5, F8, F12, F23, F36, F42) (see appendix 4 for full reference)

2.2 GAM Guide as a tool for intervention and training in mental health services This research sought to: 1) Testing the GAM-BR Guide, final product of the previous multicentre research, per Intervention Groups (GI) in CAPS in the metropolitan region of Porto Alegre; 2) contribute to the preparation of the Moderator Guide in order to establish guidelines on the use of the GAM-BR Guide per GI; 3) monitor and analyze the possible effects of the experience of participation in GI with use of the GAM-BR Guide on the formation of university personnel specialized in mental health services; 4) follow the moderation experience by users in GI with use of the GAM-BR Guide, analyzing the possible effects of that experience on users-moderators, the participants and the relationship with the service team. The study sites were mental health services in Porto Alegre (GI under the coordination of researchers), São Leopoldo (GI under the coordination of workers) and Novo Hamburgo (GI under the coordination of users). In the accompaniment of the GI and in focus groups, use was made of the methodology of narrative construction. The project team involved 2 undergraduate students and 4 master’s students, and 1 postdoctoral student.

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Important Publications: 10 published papers (A10, A12, A16, A17, A18, A22, A23, A28, A57, A59). 22 conference papers (C3, C4, C6, C7, C21, C25, C26, C27, C28, C29, C30, C31, C32, C33, C40,C44, C46, C47, C48, C49, C60, C64). 16 propagation meetings/activities (D17, D18, D19, D20, D21, D22, D23, D24, D25, D26, D27, D28, D29, D30, D31, D32). 01 book chapter (E1). 06 Theses (F4, F6, F9, F24, F27, F30). 08 website, social media or multimedia products (G7, G10, G11, G18, G19, G20, G22, G26). 02 Articles in local or international media (J5, J6) (see appendix 4 for full reference) 2.3 Medication, autonomy and citizenship in the field of mental health: validation of the autonomous medication management (GAM) in Ceará The main objective of this project was to validate the adapted GAM Guide for the northern region of Brazil. To carry out the research, a validation project was presented at a multicentre meeting in Campinas/São Paulo State, after the supervisor and other member’s consideration in order to start fieldwork afterwards. The validation of the GAM guide started in the city of Maracanaú, a metropolitan region of Fortaleza/Ceará State, in 2011. Altogether 25 meetings were held and, in keeping with the methodology of the project, the GAM group used three facilitators to perform the specific functions of management, observation and annotation. These were performed by undergraduate students. In addition, 1 master’s and 1 postdoctoral student also took part on this project. Important Publications: 02 published papers (A1, A30). 01 book chapter (E4). 03 theses (F3, F16, F25) (see appendix 4 for full reference) 2.4 Psychiatric drug use in children and teenagers of the public mental health system in the cities of Campinas-São Paulo-Brazil and Fortaleza-Ceará-Brasil This research sought to contribute to the field of public health with a focus on children’s mental health. Mental health in childhood and adolescence has been fairly neglected in public policies and by scholars and professionals. In Brazil, there is a mental health policy for children and adolescents with an emphasis on prevention and on family and community support. Harmonized with the existing legislation for severe mental disorders, there has been the deployment of day-care centres for children and adolescents. It is vitally important to note how the prevention of mental health problems during childhood and adolescence is being developed and to point out its flaws. Through this study, we can offer more chances to children and adolescents to plan their future life, and to combine their educational and training activities with those of their families. This project aimed to analyze the use of psychiatric drugs in children (under 12 years) and adolescents (between 16

12 and 19 years) of the public mental health network in the cities of Fortaleza (CE) and Campinas (SP). In addition, we investigated how involved health professionals were in the prescription and dispensation of psychoactive drugs in the public network of mental health in the two cities. Their practices were related to monitoring actions of medicalization, the establishment of clinical guidelines and the promotion of the rational use of medicine. For this purpose, this project conducted a study of medicinal product use, with focus on psychiatric drugs in children and adolescents. The transversal/crosssectional and exploratory study was divided in the following steps: 1) Study of the use of psychoactive drugs in public mental health networks, comprising a study of psychoactive drug use in children and adolescents in the cities of Fortaleza and Campinas, with quantitative and qualitative approaches; 2) study on the pharmaceutical assistance related to psychoactive drugs in the cities of Fortaleza and Campinas, with a quantitative approach; and, 3) analysis of the monitoring of medicalization, establishment of the monitoring of clinical guidelines and the promotion of the rational use of medicine in mental health services in the cities of Fortaleza (CE) and Campinas, a qualitative approach. The team involved 2 master’s students, 2 undergraduate students with undergraduate research scholarships and 1 undergraduate student with an intervention scholarship. Important publications: 01 submitted paper (B2). 02 conference papers (C50, C51). 02 theses (F26, F31) (see appendix 4 for full reference) Notable results from all GAM projects: a) Regarding the users’ perception about medication management: The research identified the main reasons for users to feel insecure about talking about their medication. The main points were the lack of such communication spaces in treatment settings, in particular because in conversations about this topic, the users feel that their families and professional staff consider them unable of affirm a reasonable opinion about their medication. As a third notable theme, the users also feel they lack important information regarding their medication and their treatment in general. b) Regarding the workers’ perception about medication management: the workers feel insecure and wary when users decide to lower or refuse their medication, and fear they might be held responsible for future problems arising from clinical deterioration. 17

c) Regarding the effects of GAM on mental health workers: Non-medical professionals linked the use of GAM with “team empowerment” (more frequently than with user empowerment). They also considered that those groups allow the recognition of new aspects of each user’s life, and such knowledge is included when formulating individual clinical projects. However, it was also reported that decisions regarding proper medication continue to be made exclusively by doctors, and not in shared decisionmaking processes (with users or other non-medical professionals). Psychiatrists (and psychiatric residents) continue to affirm an “inevitable asymmetry” in the doctor-patient relationship, also corroborating the family’s right to decide over the user’s fate in many situations (regarding treatment, medication and life choices). Other analyses indicated some positive effects mainly in how professionals (including psychiatrists) listened to their patients, perceiving their behavior in a broader manner. These findings indicate the need for further studies regarding GAM’s effect on workers. d) Regarding the effects of GAM groups on users: We concluded that the GAM groups modify the experience of users’ autonomy in the management of shared care with family members and health teams. The changes regard a different approach to group situations, developing an attentive perception of others that helped the emergence of joint responsibility in care. This indicated that users are able to develop important skills by participating in GAM groups. e) As much as health services are concerned, the GAM-BR Guide should be considered a complex instrument that relates to those services as a whole (politics, management, care, ambience and advocacy/social control). 3. Experience, narrative and knowledge: users and psychiatrists’ perspective The research project was developed in the years 2009 to 2011 through a partnership between the Psychiatric Institute of the Federal University of Rio de Janeiro, UNICAMP, Federal Fluminense University and the Federal University of Bahia, and with complementary financial support from the CNPq. The project had as its goals: to learn about the experiences and narratives of illness of people with schizophrenia in treatment in community mental health services (CAPS); to learn about the experience of the diagnosis formulation process and treatment of schizophrenia from the perspective of psychiatrists inserted in the public mental health network, including how these two 18

experiences and narratives held dialogues between each other. This led to a qualitative study of narratives produced in the context of focus groups. The recruitment of participating users had mixed criteria, based on self-attribution of common experiences after looking at some clinical motion pictures characterized as schizophrenic spectrum (available at: Vidas deste mundo - Clip 01: http://youtu.be/64-TtTViZ7w http://youtu.be/-N9s1pNZSHs

- Clip 03: http://youtu.be/p1-2zFDi7eo

- Clip 02: - Clip 04:

http://youtu.be/xtZQiR9ppws) and schizophrenia diagnosis assigned by a diagnostic instrument (MINIPLUS). The criterion for recruiting psychiatrists was that they had worked in the public mental health network. The corpus of qualitative material produced was so interesting that six master’s degree student projects evolved from it, with the intention of deepening the study of emerging topics not initially targeted. The last two were slated to be finished in January 2015. These studies analyzed subjects such as recovery and people’s experience with schizophrenia diagnosis under treatment in community services; experience and narrative of public mental health service psychiatrists on treatment of people diagnosed with schizophrenia; involvement of social networks in recovery from the perspective of people diagnosed with schizophrenia; the routine experience of people diagnosed with schizophrenia; and the experience of psychotropic use on people diagnosed with schizophrenia under treatment in community services. Important publications: 14 published papers (A4, A6, A9, A16, A27, A28, A30, A31, A34, A40, A50, A51, A54, A55). 01 submitted paper (B1). 18 conference papers (C1, C2, C5, C8, C37, C61, C62, C63, C68, C69, C70, C84, C85, C86, C87, C90, C91, C92). 07 Theses (F14,F22, F28,F29, F32, F37, F41) (see appendix 4 for full reference) Notable results: Regarding “illness experience” in general: The first important finding is that the use “illness experience” as an analytical category for people with schizophrenia spectrum disorders is insufficient, demanding a broader concept to approach their experience. Regarding the user’s and psychiatrist’s perspective about recovery: There are convergence and divergence points between users’ and psychiatrists’ perspectives about the recovery process. Even so, it is possible to create contexts in which users’ experiences illuminate the technical expertise/experience of psychiatrists and vice versa.

19

COMMUNITY INTERVENTION PROJECTS: LOCAL PARTNERSHIP BETWEEN USERS AND PROFESSIONALS These intervention-researches originated in the selection carried out by ICURA-MHC from the research projects submitted to the Alliance and which have been assessed and approved by the Citizen Committee as well as an ad hoc Special Scientific Committee composed of researchers of recognized competence in the area in Brazil. The experience of project evaluation by these two Committees pointed out important differences in how they evaluated the merits of research proposals. Users tended to prioritize proposals that included their direct participation in the research process, positioning themselves over criteria that assessed exclusively the quality of the methodological design. The Citizens Committee highlighted the ethical aspects of each research proposal, showing an acute concern for the social impact and, even more importantly, for potential harmful effects. Therefore, it is evident that there is a centrality about them, given the ethical and social dimensions of the projects, which produced an impact within the Alliance. All projects were carried out with varied emphasis on thematic axes of research, training and social innovation. 1. Mental Health User Guide Project (GUSM)

The Mental Health User Guide (GUSM) is a project that was developed by the Flourishing the life of family, friends and users of Mental health services of Campinas Association (AFLORE) since March 2010. Users participated in the creation of a guide that puts forward the discussion of various topics relevant to the understanding of treatment for mental health users. Then, the deployment of groups began, with the aim of presenting and discussing GUSM in mental health services. At this stage, 15 meetings between GUSM groups, evaluation groups and gatherings were held among participants. The experience proved to be very powerful, with respect to both the main role of the users who make the coordination of groups, and with respect to users who participated in the process in the services and who welcomed the proposal. Recently, an evaluation of the experience was recorded and available at: •

http://youtu.be/P_xzAGSONhk;



http://youtu.be/aUvLtpNr-UQ;



http://youtu.be/gBqQ1rgkRG0). 20

The project was funded by ICURA-MHC and the proposal was inspired by the Canadian experience that created the GAM Guide. The main emphasis in this research was the main role of the users and the development of a language and a communication style that was even more contextualized to the users’ universe. The Mental Health User’s Guide (GUSM) is available for free download at http://www.fcm.unicamp.br/fcm/laboratoriosaude-coletiva-e-saude-mental-interfaces. Currently, the project participants are preparing a new phase in which they will introduce and apply the GUSM to various other services. This step foresees the formation of new groups, with participation of users from different mental health services of the city of Campinas. Other than the funding of ICURA-MHC, the proposal received backing from AFLORE and is a testament to the sustainability of some projects developed during the ICURA-MHC project. Notable Results: The participative construction of the Mental Health User Guide, followed by the desire to take this product to other services, shows how the users involved are building a sense of solidarity among other mental health users, also developing leadership skills, a sense of autonomy and a better understanding of their treatment and afflictions. Important Publications: 01 published paper (A57), 02 conference papers (C53, C54) (see appendix 4 for full reference) 2. Andorinhas (Swallows) Project This project dealt with the evaluation of a reactivation process of a public space named Casa de Cultura Andorinhas, by the involvement of the local community itself in partnership with professionals from various fields such as health, education, sport, leisure and social assistance. It aimed to assess how the community can take responsibility, intersectorally, for the construction of projects that encourage meeting spaces and coexistence, through activities that promote culture, education, health and leisure. The project also sought to ensure the uniqueness of each individual, the development of potential and, especially, popular participation and the exercise of citizenship. The methodology was participatory qualitative research assessment. During the formative evaluation process, there was the need to provide more autonomy to users who participated in the project, because they themselves thought they were being overly safeguarded. 21

Notable results: -

The integration between the work carried out by the professionals from Casa de Cultura Andorinhas and the other groups and workshops done by the institution.

-

In relation to the community, even deeper integration, multiplier production. In other words, the community has started to become active. For example, a ball is now organized on a monthly basis.

-

A good bond with the users was made.

-

The community could take more activities under its own control.

-

Social contact among people increases, making way for coexistence and the occupation of public spaces.

-

Self-esteem development of the participants, to encourage them to take care of their own physical health.

-

The trainers came with the will and profile of forming multipliers. “The dance group is meshing and new people always join.” (Employee of Casa de Cultura Andorinhas). The labour highlighted the relevance of the population’s main role during deployment process of coexistence spaces, in order for them to be promoters of significant social networking for the community. An introduction video is available at http://www.youtube.com/watch?v=5EjY63TSOb8 3. Community Health Workers Abilities at the Deinstitutionalization of Madness

The research proposed an investigation of the practices operated by community health workers, in order to investigate the skills these had to integrate the network of mental health attention towards the consolidation of the Brazilian psychiatric reform. In said investigation, the methodological apparatus of institutional analysis was used, in a intervention research perspective, using tools like semi-structured interviews, field journals and workshops. A documentary survey was conducted, as well as focus groups and permanent education workshops with community health agents in Porto Alegre Rio Grande do Sul State. A primer on the subject of mental health in primary health care was produced, in collaboration with the community agents (available at http://www.arucismc.org/). Five meetings were held for the dissemination of the mentioned primer. The proposal is that the primer can be used by community health agents from across the country, as a material multiplier of the effects of the study, and as a guide for future research and actions. 22

Notable results: We conclude that the Community Health Workers demonstrated their ability to contribute significantly to psychiatric reform process through building and using their social capital to create therapeutic projects. Therefore, we argue in favor of creating spaces for sharing and exchanging experiences, in order to enhance their potency as health agents. Important Publications: 01 Thesis (F39). 01 website, social media or multimedia product (G12) (see appendix 4 for full reference)

4. Autonomous Medication Management with Residents of Mental Health at the Residential Therapeutic Services The project named Autonomous Medication Management with Residents of Therapeutic Residential Services (TRS) investigated the management of drugs with residents in the Therapeutic Residential Services facilities of São Pedro and Viamão, located in the cities of Porto Alegre and Viamão, Rio Grande do Sul, under management of the State Health Secretariat of the Rio Grande do Sul State. In partnership with ICURA-MHC, the objective was to prepare the field for the subsequent application of the GAM, at the time in final phase of the adapted version to the Brazilian context. The researchers were collective mental health students who through their professional practice training were inserted in these two facilities beginning in March 2010. This research took part in the practices of the residents between August 2010 and July 2011, and was inserted into the daily routine of the residents and workers of the TRSs, who are long-time residents of the largest asylum in the State of Rio Grande do Sul. This mapping was an intercessor on the subjects’ awareness regarding the link between the medication and user’s protagonism. The work and research tools utilized audio-visual narrative media. Video records and photography were used, as well as written and spoken narratives, to report the medication management process in TRSs São Pedro and Viamão. 5. Project Conquering Citizenship: How to develop participation? This project of GAM moderation conducted by a user of a mental health service, with collaborators, has shown a willingness to continue the GAM research, favouring the pursuit of citizenship and social participation, which was gradually achieved. Inspired by these achievements on the users’ part, this initiative was replicated to convey to other people this vision of autonomy, citizenship and participation in their treatments and other 23

forms of active participation in their lives. Following the methodology of the GAM intervention group, with the participation of 10 users, 2 moderators (users who participated in the first intervention research group GAM) and 4 collaborators, participants developed an understanding of their rights and the importance of participating in their drug treatments and therapies, achieving a better quality of life. In addition, other spaces were created at the CAPS in order to capture users’ ideas about their lives and treatments. A speech regarding this project, given at Novo Hamburgo city hall,

is

available

at

http://portal.camaranh.rs.gov.br/processos-

legislativos/pronunciamentos-1/2012/abril-1/24-04-2012-pronunciamento-da-srasandra-maria-schmitz-hoff-usuaria-do-caps-2013-centro. Notable results: This approach enhances users’ participation in other instances of political advocacy, such as city hall sessions, local and municipal health council sessions, and their respective health service assemblies. Important publications: 01 published paper (A57) (see appendix 4 for full reference)

6. Project the User’s Voice This project, carried out at Federal University of Rio de Janeiro, involved a group of mental health service users who collaborated in teaching psychopathology in an undergraduate psychology course through the construction and sharing of narratives about illness, treatment and recovery. This group, created in 2005, is expanding to other universities and mental health services in the State of Rio Janeiro. The financial incentive of ICURA-MHC 2014 allowed payment to users who were carrying out specific activities in the group, such as coordination and activity organization, as well as building a website with

its

own

domain

(http://www.facebook.com/avozdosusuarios;

http://ltc-

ead.nutes.ufrj.br/vozdosusuarios/; avozdosusuarios.com) and the production of business cards. The participation in classes allowed students to perceive some other dimensions of care, such as empowering and developing autonomy. The users continue this teaching approach, in partnership with professors from UFRJ, expanding to other courses (nursing, medicine and psychology) and engaging in occasional participation in 2 other universities (Estácio de Sá University, Rural Federal University of Rio de Janeiro). The project’s team also involved 2 undergraduate students. 24

Notable results: Increased range for the project, both by expanding the group’s participation in other departments of UFRJ and new universities, and through social media products (websites) and business cards financed by ICURA-MHC, thus increasing invitations and media coverage. Important Publications: 02 website, social media or multimedia products (G8, G9) (see appendix 4 for full reference)

vi)Project Outputs Table I – Project Outputs: total Journal Articles (peer-reviewed) Conference Papers Book Chapters Theses (concluded) Theses (in progress) Lato Sensu post-graduation Graduation Final Papers Meetings sharing GAM knowledge Websites, social media and multimedia products Media coverage (Articles in local or international media) Attendance at political advocacy events

Published 54 96 08 Master’s 16 Master’s 05 01 02 34 32

Accepted 05

Submitted 02

PhD 07 PhD 07

Post-Doctoral 04 Post-Doctoral -

08 07

Additional Financial Support Name of Proposal Evaluative Mental Health Research: instruments for the qualification of psychotropic medication use and human resource training Experience, narrative and knowledge: the perspective of the psychiatrist and of the user Evaluative Mental Health Research: indicators for evaluation and monitoring of the CAPS III of the state of São Paulo Validating the GAM device in CAPS

Funding agency

Value

Date

CNPQ

R$ 62,000

2008 - 2010

CNPQ

R$ 90,000

2009 - 2011

FAPESP

R$ 80,000

2010 - 2012

FAPERJ

R$ 15,000

2009-2013

25

The GAM Guide as a training instrument for human resources in health

CNPQ

R$ 13,936.30

2011-2013

vii) Project Outcomes and Overall Assessment and Recommendations

We summarize below our main contributions, discoveries and possible recommendations, organized according to the objectives of the ICURA program: •

Enable international comparative and collaborative research

The ICURA-MHC Alliance has allowed us to get to know and understand the organization of mental health services in Canada and Brazil and their articulation, historically and socially determined, and how social movements intersect with institutionalized mental health care. Differences in the respective policies and practices owe to many factors. Social inequality ‒ paradigmatically represented on the Brazilian side by the differences in educational achievement – is one example that allows easier integration of Canadian users, facilitated by better schooling and a more consolidated participative trajectory. Two very different systems and cultural-historical references are at the bases of two very different ways to organize the social movement, and affect the development of users’ movements in Canadian and Brazilian contexts. We were taken to study and get to know the characteristics of public policy organization and the service networks of both countries. What stood out was the fact that Brazilian interventions are always focused on the public system and looking forward to strengthen it. Colleagues from Canada, after our common work, expressed excitement about the possibility to begin to emphasize the interventions within the services and no longer only in community practices, which arise as alternatives (however, in a certain sense, end up being parallel). On the Brazilian side, the need for affirmative policies for the consolidation of social participation has become very clear to us, as shown by the governmental stimuli to the existence of Canadian associations or the implementation of ways of financing which would ensure the effective participation of people with mental health problems, freeing them from financial and cultural barriers (the struggle for free public transportation could be seen as one of those seized strategies derived from the collaborative and participatory work http://www.flickr.com/photos/camaramunicipaldenovohamburgo/5515457191/?rb=1 http://www.camaranh.rs.gov.br/Noticias.asp?IdNoticia=4595 26

http://blogdonandosantos.blogspot.com.br/2012/04/falta-de-remedios-epassagens_29.html http://www.pedrotourinho.com.br/2013/05/a-saude-mental-de-campinas-resistencia-epotencia-de-acao-coletiva/ (also see bibliography). In this regard, a real cross-fertilization occurred. A large effort (and challenge) was to experience the international dimension, the Quebec/Brazil exchange. Although it was not easy to make an appropriate space to exchange during the video conferences due to many issues (technological, translation, our academic bias, etc.), there was a mutual “contamination,” whose consequences are difficult to anticipate now. The Brazilian receptivity to the GAM is a strong example of this international dimension. The Brazilians’ Citizen Committee trips to Quebec and those of Quebecers to Brazil led to explore another context, experience events and meet personally. Such diverse contexts and the language barrier did not prevent important learnings from occurring. The ICURA-MHC created an “arena” in each national territory that did not exist before. In those national arenas (between several states in Brazil, between various groups in Quebec), exchanges were more intense and alive, and the majority of researches were in fact developed in these arenas. The international arena (partially virtual) was likewise designed and tested with intensity. The mutual incorporation of new problems and possible solutions is a proof of that. A resumption of the fight for human rights (beyond health) on the Brazilian side and a reappraisal of the public sector and its need for reform on the Canadian side are the strengths of this cross-fertilization. •

Promote sharing of knowledge, resources and expertise between academic and non-academic partners

Thinking among researchers, workers, students and activists, each holding different positions in the universe of the academic research and practice was a powerful strength of the Alliance. Much has been learned during the National Multicentre discussions and debates and during the International Seminars via video-conference. The ICURA-MHC allowed us to experience, in a research context, the Brazilian antiasylum movement. We mixed everyone, and from that mix, transformed mental health practices (whether they are research, intervention or activists) in order to broaden horizons, circulate knowledge, experiences and questions. Apart from the enclosure of identities and the separation of knowledge and languages (academic/profane; of 27

those who suffer/of those who care; etc.) even if not always succeeded, the bet paid off, for sure! Innovation in relation to users’ participation is a highlight of the ICURA-MHC project. From the smaller action-oriented projects to their governance (where the choices of the main research orientations were made), the participative strategy was widely explored. Participatory research is already known, although elaborating a research program including people from the community is much rarer. Some members of the Citizen Committee, who had already taken part in other “participative” researches, affirmed that they had never gone so far in the participative degree. In other studies, the participative aspect is often a façade. This wasn’t the case in our research. Another main point of the ICURA-MHC project is the local repercussions and the large quantity of professionals that were affected by the Alliance in some way. The commitment of users in service training, offering themselves to “teach” the professionals both in the GAM as in GUSM projects, or their participation at the universities, showing the users’ voice and presenting their firsthand experiences to undergraduate students, is another big bet that seems to have paid off, and it is proving to be self-sustaining beyond the current ICURA-MHC period. •

Enrich the training environment for students

Students who graduated in the framework of ICURA-MHC and who started activities in other places after concluding their courses helped to spread and change the attitude of others, betting on changes to the services network, changing their own behaviour and interfering in educational and work processes. Several of our graduate students, after passing through ICURA-MHC, became professors in Brazil and give frequent feedback and testimonials of how they changed their attitude. Three post-doctoral researchers and 2 doctoral candidates graduated from Brazilian public universities in the extreme geographic borders of the country (from Maranhão in the north to Santa Maria in the south), another doctorate student entered a public university in Argentina. Three former master’s degree students were hired to private universities.

28

Some of them have created disciplines on the subject of citizenship and mental health, and began to take users to give firsthand testimonials in psychology courses and psychiatry residencies. Surely these results would not have happened if it were not for the strong influences and exchanges during the ICURA-MHC project. We reproduce and encourage strongly rooted values associated to the emergence of the ICURA-MHC strategy wherever we go, against the grain of a still imposing and biomedical hegemonic position in Brazil. Due to this, we believe another strength of the Alliance was to provide training for students in this rich encounter among actors, countries and practices. To have circulated between Quebecers and Brazilian teams and to have experienced such a rich environment of lively exchange and discussions, having practiced as trainee-researchers enriched by the debates and controversies, exploring the feeling of being with and thinking alongside the users (not about them). These were aspects that the students pointed out as valuable. The ethical-political impact of such researcher training looks very promising and becomes very relevant in times of hegemony of randomized double-blind studies, in which the value of the word becomes null. “Once we conducted the research this way, I believe it impossible to return to traditional research. The principal gain is not in the legitimacy of the knowledge (a facade), but in the contribution of the project itself, be it in the questioning, the analysis or in the transmission. I now know that it would be difficult for me to be able to work on a project as a coordinator, without a truly participative dimension. I would have the impression that something crucial is missing.” (Testimonial of a participating student) •

Reinforce community decision-making and problem-solving capacity.

Another strength of the Alliance was to allow an “arena” where different stakeholders of the community mental health movement could position themselves, and to debate and find a “neutral space” since the arena was not the territory of any of them. The Alliance allowed experiencing a different relationship between activists/users/workers and the academic universe and the world of research. It was possible to pinpoint, as a group, the various meanings of research and its implications with regard to practices and mental health struggles. Together, it was possible to forge a place halfway between the two extremes: legitimate and unquestionable knowledge or the violent practice that makes bodies and minds guinea pigs. This aspect must continue beyond the Alliance.

29

The movement of the Brazilian users in favour of a better urban mobility, access to free transportation passes both in Rio Grande do Sul and in Campinas also highlights the effects of social force activation that our Alliance created. As well as the increasing momentum

of

the

anti-asylum

movement

(see:

http://www.sinpsi.org/noticias.php?id=2964; http://www.saude.rs.gov.br/conteudo/8193/?Encontro_discute_autonomia_e_protagonis mo_de_usu%C3%A1rios_de_Sa%C3%BAde_Mental

;

http://saudeecosol.org/wp-

content/uploads/2013/06/Pag-042.pdf ; among others) The dissemination and implementation of the GAM strategy by the health secretariat of the State of Rio Grande do Sul shows the potential impact on health system managers of some of the research we developed (see: http://youtu.be/FRMVIu-eEUM). In Rio Grande do Sul, a former student of the ICURA-MHC project was hired to support and assist the process of dissemination of the GAM strategy. The developed indicators of psychosocial care centres (CAPs) were also an object of interest, in this case the Brazilian Ministry of Health. The latter, through its Mental Health technical area, invited researchers from ICURA-MHC to present this contribution in the mental health coordinator forum, which brings together mental health technical coordinators of all states and of major Brazilian cities. Developments of these presentations are ongoing. Finally, yet importantly, the ICURA-MHC project has found a gentle, respectful and effective way of working with people from all backgrounds. This is a rare feat! Our way of working could inspire and serve as a model for other research teams and work teams in mental health. Problems are becoming more and more complex, multiple issues and changes are pressing, and we need to learn to work together more than ever. Yet that is what we see less and less of in organizations, institutions and practices. Indeed, different models of collaboration exist, but the one of ICURA-MHC works wonderfully! It is difficult to break down why ICURA-MHC worked so well, as it is the chemistry of all its members. More time and exchanges would be required. However, maybe we can mention briefly some points that are key, but not necessarily in the right order. o The contribution role of the service users was clearly a key element. They represent the “glue” or cement, so to speak. The service users have rekindled our activist flame. They kept bringing us back to the essence, to what we are fighting for. They did not have to say much and their impact 30

was always so powerful. They were a key factor in us not going astray, and in staying focused on what is crucial. o We worked with our heads, but also with our hearts. We could go on and on about how the special chemistry ICURA kept. The coordination team and the system of governance applied made it possible to navigate this unlikely ship! Everybody, from the top to bottom of the line, greeted each other with open hearts. Change needs an open heart to start. o Welcoming another culture was also a key ingredient. Becoming immersed in the culture of another brings about tremendous benefits for any endeavour. We have to adopt another point of view and this enriches everything: our practices and our personal lives. Change comes about when we change personally and the ICURA-MHC experience was an open door for that. o We need to humanize psychiatry, psychiatric practices and organizations. ICURA-MHC was about keeping the human perspective in all its projects, encounters and exchanges – and this is why it works and has such a formidable strength.

Bibliography of the narrative report Amarante P. Loucos pela vida: a trajetória da reforma psiquiátrica na Brasil. Rio de Janeiro: Fiocruz, 1995 ____________A (clínica) e a Reforma Psiquiátrica. In Amarante P. (coord.). Archivos de saúde mental e atenção psicossocial. Rio de Janeiro: Editora Nau, 2003. BASAGLIA, Franco (org.). A instituição negada. Rio de Janeiro: Graal, 1985 Campos, Gastão Wagner De Sousa, Onocko-Campos, Rosana Teresa, & Del Barrio, Lourdes Rodriguez. (2013). Políticas e práticas em saúde mental: as evidências em questão. Ciência & Saúde Coletiva, 18(10), GOFFMAN, E. Estigma: notas sobre a manipulação da identidade deteriorada. 4ª ed. Rio de Janeiro: LTC, 1988. Goffman E. Manicômios, prisões e conventos. São Paulo: Editora Perspectiva S.A, 1974. Foucault M. Microfísica do poder. Rio de Janeiro: Graal, 1979.

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Lima EA, Yasui, S. Territórios e sentidos: espaço, cultura, subjetividade e cuidado na atenção psicossocial. Ciência e Saúde Coletiva. No prelo. 2014. Nicácio, F. UTOPIA DA REALIDADE:CONTRIBUIÇÕES DA DESINSTITUCIONALIZAÇÃO PARA AINVENÇÃO DE SERVIÇOS DE SAÚDE MENTAL. Doutorado. Unicamp, Campinas, 2003. Onocko Campos, R. T. . Fale com eles! o trabalho interpretativo e a produção de consenso na pesquisa qualitativa em saúde: inovações a partir de desenhos participativos.. Physis (UERJ. Impresso), v. 21, p. 1269-1286, 2011. Saraceno B. Reabilitação psicossocial; uma estratégia para a passagem do milênio. In Pitta, Ana (org.) Reabilitação Psicossocial no Brasil. São Paulo: Ed. Hucitec, 1996. Pitta, A. Reabilitação Psicossocial no Brasil. São Paulo: Ed. Hucitec, 1996. ROTELLI, Franco. A instituição inventada. In: ROTELLI, Franco; LEONARDIS, Ota; MAURI, Diana; RISIO, C. Desinstitucionalização. São Paulo: Hucitec, 1990. YASUI, S. Rupturas e encontros: desafios da reforma psiquiátrica brasileira. Doutorado. Escola Nacional de Saúde Pública, Rio de Janeiro, 2006.

32

Appendix 1 Table II – Working Team Name

Affiliation

Role at ARUCI

Other relevant information

Scholarships (if any)

Professors

1 Rosana Teresa Onocko Campos 2 Maria Salete Bessa Jorge

18 UNICAMP, SP, BR UECE, CE, BR

Researcher, coordinator and main articulator in Brazil

Professor at UNICAMP

Researcher and post-doctoral student (UNICAMP)

Professor at UECE

3 Mirian Parente Monteiro

UFC, CE, BR

Researcher

Professor at UFC

4 Luis Fernando Farah Tófoli

UFC, CE, BR

Researcher

Professor at UFC (left at the beginning of the project)

5 André do Eirado Silva

UFF, RJ, BR

Researcher

Professor at UFF, RJ, BR

6 Eduardo Passos

UFF, RJ, BR

Researcher, coordinator of "GAM research" at RJ

Professor at UFF, RJ, BR Professor at UFRJ

7 Gláucia Viana Simões

UFRGS, RS, BR

Researcher

8 Analice de Lima Palombini

UFRGS, RS, BR

Researcher, field coordinator at Rio Professor at UFRGS Grande do Sul, BR

UFRGS, RS, Brasil

Researcher, coordinator of "Projeto Professor at UFRGS Parceiro: ACS"

9 Simone Mainieri Paulon 10 Erotildes Maria Leal

UFRJ, RJ, BR

Researcher

Professor at UFRJ

11 Octavio D. de Serpa Junior

UFRJ, RJ, BR

Researcher, coordinator of "Experience, Narrative and Knowledge" research at RJ

Professor at UFRJ

12 Ana Cristina Figueiredo

UFRJ/IPUB, RJ, BR

Researcher

Professor at UFRJ (left at the beginning of the project)

13 Paulo Madureira

UNICAMP, SP, BR

Researcher

Professor at UNICAMP (left at the beginning of the project)

14 Mário Eduardo Pereira

UNICAMP, SP, BR

Researcher

Professor at UNICAMP (left at the beginning of the project)

15 Eliana Rocha

UNIFESP, SP, BR

Researcher

Professor at UNIFESP

16 Fernando Kinker

UNIFESP, SP, BR

Researcher

Professor at UNIFESP

33

Scholarship CNPq

Bolsista MS

Scholarship - CAPES

17 Ana Paula Soares Gondim 18 Christian Sade Vasconcelos

UNIFOR, CE, BR UNIVERSO, RJ, BR

Post-doctoral student (UNICAMP) and researcher

Professor at UNIFOR, then professor at UFC

Researcher

Professor at UNIVERSO, then professor at UFF

Scholarship - CAPES (PROCAD)

Post-Doctoral Students

6 UECE, CE, BR

Post-doctoral student (UNICAMP) and researcher

Professor at UNIFOR, then professor at UFC

Scholarship - CAPES (PROCAD)

20 Carlos Alberto Pegolo da Gama

UNICAMP, SP, BR

Post-doctoral student (UNICAMP)

Professor at UFSJ

Scholarship - ARUCI (IDRC through FUNCAMP)

21 Laura Lamas Martins Gonçalves

UNICAMP, SP, BR

PhD Student, then post-doctoral student (UNICAMP)

19 Ana Paula Soares Gondim

22 Maria Angélica Zamora Xavier 23 Maria Salete Bessa Jorge 24 Sabrina Stefanello

UFRGS, RS, BR UECE, CE, BR UNICAMP, SP, BR

Post-doctoral student (UNICAMP)

Developed doctoral and post-doctoral (UNICAMP) theses related to ARUCI projects Intervention group operator. Developed post-doctoral thesis related to ARUCI projects

Scholarship - ARUCI (IDRC through FUNCAMP)

Researcher and Post-doctoral student (UNICAMP)

Professor at UECE

Scholarship - CNPq

Post-doctoral student (UNICAMP)

Mental health worker - Psychiatrist (at Campinas). Developed post-doctoral thesis (UNICAMP) related to ARUCI projects

Scholarship - ARUCI (IDRC through FUNCAMP)

PhD Students

25 Antônio Germane Alves Pinto

14 UECE, CE, BR

PhD Student

26 Jorge Maciel Melo

UFF, RJ, BR

PhD Student

27 Letícia Maria Renault de Barros

UFF, RJ, BR

PhD Student

28 Sandro Eduardo Rodrigues

UFF, RJ, BR

PhD Student

29 Marília Silveira

30 Michele da Rocha Cervo

UFRGS, RS, BR

UFRGS, RS, BR

GAM group operator

Scholarship - FUNCAP

Intervention group operator . Dissertation related to ARUCI projects (in progress) Intervention group operator . Dissertation related to ARUCI projects (in progress) Intervention group operator . Developed thesis/dissertation related to ARUCI projects.

Administrative Support (2010)/ Scholarship - ARUCI (IDRC through FUNCAMP)

Started as Master's student, then PhD Student

Dissertation related to ARUCI projetcs (in progress). Developed thesis related to ARUCI projects.Worker at Institutional Support - Mental Health (at RS, BR)

Researcher, then PhD Student

Participated in GAM at Novo Hamburgo, RS, BR. Dissertation related to ARUCI projects (in progress). Currently a professor at Universidade Estadual do Centro-Oeste do Paraná, PR,BR

34

Scholarship - ARUCI (IDRC through FUNCAMP) Scholarship - ARUCI (IDRC through FUNCAMP)

Scholarship - CNPq (2010-2011)

Rodolfo Manuel Giovanello 31 Alberto Diaz

UNICAMP, SP, BR

32 Bruno Ferrari Emerich

UNICAMP, SP, BR

Deivisson Vianna Dantas dos

Mental Health worker - Psychologist (at Campinas, SP, BR)

PhD Student

Developed thesis related to ARUCI Master's student, then PhD Student projects. Dissertation in progress related to ARUCI projects. Mental health worker - Psychiatrist (at Campinas). Developed PhD Student thesis/dissertation related to ARUCI projects Developed doctoral and post-doctoral PhD Student theses related to ARUCI projects

Scholarship - CAPES Scholarship - ARUCI (2013-2014) Scholarship - ARUCI (IDRC through FUNCAMP)

33 Santos

UNICAMP, SP, BR

34 Laura Lamas Martins Gonçalves

UNICAMP, SP, BR

35 Thiago Lavras Trapé

UNICAMP, SP, BR

PhD Student

Developed thesis/dissertation related to ARUCI projects

36 Ana Luiza Ferrer

UNICAMP, SP,BR

PhD Student and field coordinator at Santos, SP, BR

Developed thesis/dissertation related to ARUCI projects

Scholarship - FAPESP

UNICAMP, SP,BR

PhD Student

Developed thesis/dissertation related to ARUCI projects

Scholarship - ARUCI (IDRC through FUNCAMP)

Dissertation related to ARUCI projetcts (in progress). Developed thesis related to ARUCI project (GAM). Member of AFLORE (at Campinas, SP,BR)

Scholarship - CNPq (2010)

Luciana Togni de Lima e Silva

37 Surjus

38 Thais Mikie de Carvalho Otanari

UNICAMP/AFLORE/ Started as Master's Student, then UdeM (BR/CA) PhD Student

Scholarship - ARUCI (IDRC via FUNCAMP) (2011)

Master's Students

29

39 Alexandre Melo Diniz

UECE, CE, BR

Master's student

GAM group operator

40 Indara Cavalcante Bezerra

UECE, CE, BR

Master's student

Developed thesis/dissertation related to ARUCI projects

Gomes Ferreira 41 Mardênia Vasconcelos

UECE, CE, BR

Master's student

GAM group operator

42 Ana Paula Pessoa Maciel

UFC

Master's student

43 Beatriz Prata Almeida

UFF, RJ, BR

Started as undergraduted researcher (PIBIC), then as Master's student

44 Júlia Florêncio Carvalho Ramos

UFF, RJ, BR

Master's student

UFF, RJ, BR

Started as undergraduted researcher (PIBIC), then as Master's student

45 Lorena Rodrigues Guerini

35

Developed thesis/dissertation related to ARUCI projects Intervention group operator (at Caps São Pedro da Aldeia). Developed undegraduated research (PIBIC) related to ARUCI projects. Thesis related to ARUCI projects (in progress). Intervention group operator (at Caps São Pedro da Aldeia) Intervention group operator (at Caps São Pedro da Aldeia). Developed undegraduated research (PIBIC) related to ARUCI projects. Developed thesis/dissertation related to ARUCI projects.

Scholarship - CAPES

Scholarship - CAPES Scholarship - CNPq Scholarship - CNPq (2010)/Scholarship - FAPERJ (2011)/Scholarship - CAPES (2014-2016) Scholarship - ARUCI (IDRC through FUNCAMP) Scholarship - PIBIC/FAPERJ (2012/2013) (undergraduate research scholarship) / Scholarship - CAPES (2013/2015)

46 Marília Silveira André Luis Leite de Figueiredo

UFF, RJ, BR

Started as Master's student, then PhD Student

Developed thesis related to ARUCI projects. Dissertation related to ARUCI projects (in progress). Worker at Institutional Support - Mental Health (at RS, BR) Developed thesis/dissertation related to ARUCI projects

47 Sales

UFRGS, RS, BR

Master's student

48 Carlos Augusto Piccinini

UFRGS, RS, BR

Master's student

49 Cecília de Castro e Marques

UFRGS, RS, BR

Master's student

50 Livia Zanchet

UFRGS, RS, BR

Master's student

51 Marciana Zambillo

UFRGS, RS, BR

Master's student

52 Rafael Gil de Medeiros

UFRGS, RS, BR

Master's student

53 Bruno Ferrari Emerich

UNICAMP, SP, BR

Developed thesis related to ARUCI Master's student, then PhD Student projects. Dissertation related to ARUCI projects (in progress).

54 Catarina Magalhães Dahl

UNICAMP, SP, BR

Master's student

Developed thesis/dissertation related to ARUCI projects

55 Ellen Cristina Ricci

UNICAMP, SP, BR

Master's student

Thesis/dissertation related to ARUCI projects (in progress)

56 Iara Scaranelo Benini

UNICAMP, SP, BR

Started as residency student, then as Master's student

Developed thesis/dissertation related to ARUCI projects

UNICAMP, SP, BR

Started as Undergraduated Student, then residency student, then Master's student

Thesis/dissertation related to ARUCI projects (in progress). Developed undergradute research related to ARUCI projects.

57 Ivana Oliveira Preto Baccari

Developed thesis/dissertation related to ARUCI projects Developed thesis/dissertation related to ARUCI projects Mental Health professional (at RS, BR). Intervention group operator. Developed thesis/dissertation related to ARUCI projects Thesis related to ARUCI projects (in progress). Intervention group coordinator during GAM research (2nd phase).

58 Karime da Fonseca Porto

UNICAMP, SP, BR

Master's student

59 Luana Ribeiro Borges

UNICAMP, SP, BR

Started as residency student, then as health profissional and Master's student

UNICAMP, SP, BR

Master's student

Maria Auxiliadora Campos

60 Rodrigues

36

Developed thesis/dissertation related to ARUCI projects. Assistant at Mental Health Coordination - Ministry of Health (BR) Mental Health worker, previously residency student at UFRGS. Developed thesis/dissertation related to ARUCI projects. Developed thesis/dissertation related to ARUCI projects.

Scholarship - CAPES Scholarship - ARUCI (IDRC via FUNCAMP) Scholarship - ARUCI (IDRC) Research Scholarship - CAPES Scholarship - REUNI

Scholarship - CNPq / ARUCI (IDRC)

Undergraduate research scholarship - PIBIC (2010) / Scholarship - Ministry of Health (2011-2013), Scholarship - ARUCI

61 Mariana Barbosa Pereira

UNICAMP, SP, BR

Master's student

Developed thesis/dissertation related to ARUCI project (Experience, Narrative and Knowledge research)

62 Mônica Krieck Montanhar

UNICAMP, SP, BR

Master's student

Developed thesis/dissertation related to ARUCI projects

UNICAMP e AFLORE, SP, BR

Master's student

Developed thesis/dissertation related to ARUCI projects. Member of AFLORE (at Campinas, SP,BR)

Master's student

Developed thesis/dissertation related to ARUCI project (Experience, Narrative and Knowledge research). Member of AFLORE (at Campinas, SP,BR)

Scholarship - CNPq

Dissertation related to ARUCI projetcts (in progress). Developed thesis related to ARUCI project (GAM). Member of AFLORE (at Campinas, SP,BR)

Scholarship - CNPq (2010)

Scholarship - CNPq

63 Rodrigo Fernando Presotto

64 Tatiana Scala Lopes

65 Thais Mikie de Carvalho Otanari 66 Igor da Costa Igho Leonardo do Nascimento

67 Carvalho

UNICAMP, SP, BR

UNICAMP/AFLORE/ Started as Master's Student, then UdeM (BR/CA) PhD Student UNIFESP, SP, BR

Master's student

Mental Health Worker (at Santos, SP, BR)

UNIFOR, CE, BR

Master's student

Developed thesis/dissertation related to ARUCI projects.

Residency Students

24

68 Renata Savian da Rosa

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

69 Tanise Kettermann Fick

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

70 Cristiane Inacio Mença

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

71 Ricardo André Ceccim

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

72 Katiuscia Lenise Wichinieski

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

73 Heloísa Germany

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

37

74 Vinicius Schneider da Silva

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

75 Diego Elias dos Santos

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health Residency Scholarship - Ministry of Health

76 Ana Lua Rauber

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS. Coordenada Serviço residencial terapêutico

77 Cristiane Inácio Menca

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

78 Janaína Delgado Falcão da Rocha

UFRGS, RS, BR

Residency Student

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS

Residency Scholarship - Ministry of Health

79 Paolo Porciúncula Lamb

UFRGS, RS, BR

Residency Student

80 Pedro Sanchez Soares

UFRGS, RS, BR

Residency Student

81 Côrtes

UNICAMP, SP, BR

Residency Student

82 Gabriela Barreto

UNICAMP, SP, BR

Residency Student

83 Mirella Hermsdorff Moraes

UNICAMP, SP, BR

Residency Student

84 Angelica Rocha

UNICAMP, SP, BR

Residency Student

85 Mayra Aragón

UNICAMP, SP, BR

Residency Student

86 Bruno de Paula

UNICAMP, SP, BR

Residency Student

87 Nathália Seminario

UNICAMP, SP, BR

Residency Student

Gabriela Vasconcelos Fontes Rocha

Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS Residency program: Residência Integrada Multiprofissional em Saúde Mental Coletiva - UFRGS. Intervention Group operator (at CAPS Cais Mental Centro - Porto Alegre, RS, BR) Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Residência em Medicina de Família (UNICAMP). GAM group operator. Residency program: Residência em Medicina de Família (UNICAMP). GAM group operator. Residency program: Residência em Medicina de Família (UNICAMP). GAM group operator. Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Psychiatry (UNICAMP). GAM group operator.

38

Residency Scholarship - Ministry of Health

Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Ministry of Education Residency Scholarship - Ministry of Education Residency Scholarship - Ministry of Education Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Ministry of Education

88 Gabriela Menegatti

UNICAMP, SP, BR

Residency Student

89 Carolina Cruz Carolina Ferreira

UNICAMP, SP, BR

Residency Student

90 Iara Scaranelo Benini

UNICAMP, SP, BR

Residency Student

Enila Campos Rocha 91 Thabita Raboni

UNICAMP, SP, BR

Residency Student

Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator. Residency program: Aprimoramento em Saúde Mental (UNICAMP). GAM group operator.

Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Campinas (SP) City Hall Residency Scholarship - Campinas (SP) City Hall

Undergraduated Students

92 Maria Michele Melo Araujo 93 Franklin Teixeira Regis 94 Mariana Teixeira Barroso

21 UFC, CE, BR

Undergraduated Student

UFC, CE, BR

Undergraduated Student

UFC, CE, BR

Undergraduated Student

95 Emanuela Diniz Lopes

UFC, CE, BR

Undergraduated Student

96 Yuri Rocha Taumaturgo

UFC, CE, BR

Undergraduated Student

97 Maria Aline Lima Saraiva Praseres

UFC, CE, BR

98 Stiven Alves de Assis

UFC, CE, BR

Develop intervention project related to ARUCI projects

Intervention Scholarship - UFC

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC

UFF, RJ, BR

Started as undergraduated Student, then as Master's student

Intervention group operator (at Caps São Pedro da Aldeia). Developed undegraduated research (PIBIC) related to ARUCI projects. Developed thesis/dissertation related to ARUCI projects.

Undergraduate Researcher Scholarship - PIBIC/Cnpq. Undergraduate Researcher Scholarship - PIBIC/FAPERJ (2011). Research Scholarship CAPES (2014-2016)

100 Paula Milward de Andrade

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC/Cnpq (2010)

101 Paulo Renato Pinto de Aquino

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC/Cnpq (2010)

102 Raquel Andrade

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC/Cnpq (2010)

103 Rebecca Dorneles Roquette

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - FAPERJ (2010 e 2011)

104 Mateus Braune Melo

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - FAPERJ

99 Beatriz Prata Almeida

39

105 Maria Fernanda Bath

Developed undegraduated research (PIBIC) related to ARUCI projects Intervention group operator (at Caps São Pedro da Aldeia). Developed undegraduated research (PIBIC) related to ARUCI projects.Developed thesis/dissertation related to ARUCI projects.

Undergraduate Researcher Scholarship - PIBIC/Cnpq (2010)

UFF, RJ, BR

Undergraduated Student

106 Lorena Rodrigues Guerini

UFF, RJ, BR

Started as undergraduated Student, then as Master's student

107 Thaís de Sá Mello

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC (2013 a 2014)

108 Alana Machado Batista

UFF, RJ, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC (2013 a 2014)

Vieira Miguel Gonçalves 109 Luciana Ignácio

UFRGS, RS, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC (2010-2011)

110 Sandra Zanatta Guerra

UFRGS, RS, BR

Undergraduated Student

Undergraduate Researcher Undegraduated research (PIBIC) related Scholarship - PIBIC (2012-2013, to ARUCI projects (in progress) 2013-2014, 2014-2015)

111 Carla Oliveira Melo

UFRGS, RS, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC (2012-2013)

112 Renata de Paula Duarte

UNIFOR, CE, BR

Undergraduated Student

Developed undegraduated research (PIBIC) related to ARUCI projects

Undergraduate Researcher Scholarship - PIBIC

Users and professionals

Scholarship - FAPERJ de Iniciação Científica (2012/2013). Research Scholarship - CAPES (2013/2015)

47

113 Fernando Medeiros

AFLORE, SP, BR

collaborator

114 Amauri Nogueira

AFLORE, SP, BR

collaborator

115 Nilson Souza do Nascimento

AFLORE, SP, BR

collaborator

116 Anecy

UECE, CE, BR

collaborator

117 Luciana

UECE, CE, BR

collaborator

118 Mariana

UECE, CE, BR

collaborator

119 Indara

UECE, CE, BR

collaborator

120 Carolina

UECE, CE, BR

collaborator

Unified Health System's (SUS) user. Member of AFLORE (at Campinas, SP,BR) Unified Health System's (SUS) user. Member of AFLORE (at Campinas, SP,BR) Unified Health System's (SUS) user Health professional. GAM Group operator Health professional. GAM Group operator Health professional. GAM Group operator Health professional. GAM Group operator Health professional. GAM Group operator

40

121 Fabiana

UECE, CE, BR

collaborator

122 Ana Claudia de Brito Passos

UFC

collaborator

123 Fabrícia Maia Dantas 124 Camylla Maria Carvalho Moura

UFC

collaborator

UFC

collaborator

125 Cristiane Gonçalves da Rocha

UFF, RJ, BR

126 Adriana Hashem Muhammed

Helath professional. GAM Group operator Pharmacist of the Drug Information Center - UFC Health professional Administratrive/Technical Assistant - Bolsa de Apoio Técnico CNPq (2010)

Administratrive Assistant Mental Health Professional Psychologist. Intervention group operator (at Novo Hamburgo, RS,BR and São Leopoldo, RS, BR)

UFRGS, RS, BR

collaborator

UFRGS, RS, Brasil

collaborator

128 Nancy Weingartner

UFRGS, RS, BR

collaborator

Mental Health Professional Psychiatrist. Intervention group operator (at Caps Capilé - RS,BR)

129 Vannia Ferretjans

UFRGS, RS, BR

collaborator

Intervention group operator (at Caps Centro - Porto Alegre, RS, BR)

130 Julia Bongiovanni

UFRGS, RS, BR

collaborator

Mental Health Professional (at Esteio, RS,BR)

131 Juliana Schneider Guterres

UFRGS, RS, BR

collaborator

UFRGS, RS, Brasil

collaborator

UFRGS, RS, BR

collaborator

UFRGS, RS, Brasil

collaborator

135 Larry Didrich

UFRGS, RS, BR

collaborator

136 Ricardo Lugon Arantes

UFRGS, RS, BR

collaborator

127 Éverson Rach

132 Rafael Wolski de Oliveira 133 Sandra Schimitz Hoff 134 Stelamaris Glück Tinoco

Mental Health Professional. Intervention Group operator (at Caps Centro - Novo Hamburgo, RS, BR) Mental Health Professional. Coordinator of Morada Viamão Therapeutic Housing Service Researcher. Unified Health System's (SUS) user. Intervention Group operator (at Caps Centro - Novo Hamburgo, RS, BR) Mental Health Professional. Coordinator of Morada São Pedro Therapeutic Housing Service Researcher. Intervention Group operator (at Caps Centro - Novo Hamburgo, RS, BR) Health Professional, Intervention Group operator (at Caps Centro - Novo Hamburgo, RS, BR)

41

Psychology Internship. Intervention Group operator (at CAPS Cais Mental Centro/POA, RS, BR) Mental Health Professional. Intervention Group operator (at CAPS Capilé - São Leopoldo) Mental Health Professional. Intervention Group coordinator

137 Gelson Cardoso Lopes

UFRGS, RS, BR

collaborator

138 Marliese Chiarani da Silva Schneid

UFRGS, RS, BR

collaborator

139 Maria Gabriela Curubeto Godoy

UFRGS, RS, BR

collaborator

140 Bruno P. de Oliveira

UFRGS, RS, BR

collaborator

Psychology Intern at CAPS Capilé (at São Leopoldo, RS, BR)

141 Priscila D’Avila

UFRGS, RS, BR

collaborator

Intervention Group operator

142 Vera Lucia Sobral Resende

UFRGS, RS, BR

collaborator

Worker at Therapeutic Housing Service Morada São Pedro (at RS,BR)

143 Alexandra Ximendes

UFRGS, RS, BR

collaborator

Mental Health worker (at Esteio, RS,BR)

144 Júlio Andrade

UFRJ/IPUB, RJ, BR

collaborator

Researcher. Unified Health System's (SUS) user

145 Maria Elizabeth Sabino

UFRJ/IPUB, RJ, BR

collaborator

Researcher. Unified Health System's (SUS) user

146 Daniel Mondoni

UNICAMP, SP, BR

collaborator

Researcher. Unified Health System's (SUS) user

147 Lilian Miranda

UNICAMP, SP, BR

collaborator

Left at the beginning of the project

148 Maria Regina do Nascimento

UNICAMP, SP, BR

collaborator

Member of the local health council (at Campinas, SP, BR)

149 Carolina Sombini

UNICAMP, SP, BR

collaborator

Mental Health Network - Manager (at Campinas, SP)

150 Renato Ferreira Felix de Oliveira

UNICAMP, SP, BR

collaborator

Researcher and Unified Health System's (SUS) user

151 Silvana Pio

UNICAMP, SP, BR

collaborator

Mental Health Professional (at Campinas, SP)

152 Marília Sper de Albuquerque

UNICAMP, SP, BR

collaborator

Mental Health Professional (at Campinas, SP)

153 Karine Cambuy

UNICAMP, SP, BR

collaborator

Mental Health Professional (at Campinas, SP)

154 Devanir Bissoli

UNICAMP, SP, BR

collaborator

Mental Health Professional (at Campinas, SP)

155 Crispim Antonio Campos

UNICAMP, SP, BR

Administrative assistant

Administratrive/Technical Assistant - Bolsa de Apoio Técnico

Administrative/Technical Assistant (bolsa de apoio técnico)

42

156 Stella Chebli

UNIFESP, SP, BR

collaborator

157 Alessandra Xavier Miron

UFRGS, RS, BR

collaborator

Worker at São Leopoldo City Hall

158 Maria Lúcia Derman

UFRGS, RS, BR

collaborator

Researcher. Unified Health System's (SUS) user

159 Paulo Ricardo Ost

UFRGS, RS, BR

collaborator

Researcher. Unified Health System's (SUS) user

43

Appendix 2 Table III – Students Total Funded by IDRC Brazilian Universities

Canadian Universities

# at Universidade Estadual de Campinas (UNICAMP)

# at Universidade Federal do Rio Grande do Sul (UFRGS)

# at Universidade Federal Fluminense (UFF)

# at Universidade Federal de São Paulo (UNIFESP)

# at Universidade Estadual do Ceará (UECE)

# at Universidade Federal do Ceará (UFC)

# at Universidade de Fortaleza (UNIFOR)

# total at Brazilian Universities

# at Canadian universities

Undergraduate

0

0

0

0

0

0

0

0

1

Masters

2

2

1

0

0

0

0

5

10

Doctoral

4

0

3

0

0

0

0

7

12

Postdoctoral

3

0

0

0

0

0

0

3

1

# at Universidade Estadual de Campinas (UNICAMP)

# at Universidade Federal do Rio Grande do Sul (UFRGS)

# at Universidade Federal Fluminense (UFF)

# at Universidade Federal de São Paulo (UNIFESP)

# at Universidade Estadual do Ceará (UECE)

# at Universidade Federal do Ceará (UFC)

# at Universidade de Fortaleza (UNIFOR)

# total at Brazilian Universities

# at Canadian universities

Undergraduate

0

3

10

0

0

7

1

21

1

Residency

11

13

0

0

0

0

0

24

-

Masters

11

4

3

1

3

1

1

24

-

Doctoral

4

2

0

0

1

0

0

7

-

Postdoctoral

3

0

0

0

0

0

0

3

-

Paid

Unpaid*

*may have received research scholarships or grants from Brazilian agencies

44

Appendix 3 Table IV – Project Activities Project Title Pesquisa Avaliativa de Saúde Mental (Mental Health Evaluative Research)

Guia de Gestão Autônoma da Medicação - GAM (Gaining Autonomy with my Medication Guide - GAM)

SUBPROJECT: Autonomia e direitos humanos: validação do guia de autônoma da medicação - GAM (Autonomy and human rights - validating the Gaining Autonomy with my Medication Guide - GAM)

Project/Reasech specific objectives

Outcomes and other relevant results

a) Translate, adapt and test in community mental health services (CAPS), in the cities of Rio de Janeiro-RJ, Novo Hamburgo-RS and Campinas-SP), the "Gaining Autonomy with my Medication Guide” (GAM), developed in Canada to help people with serious mental health problems; b) evaluate GAM's impact in the mental health professionals training (psychiatrists and non-medical personnel)

06 published papers (A2,A7,A14,A35,A36,A58) 31 conference papers (C9,C10,C11, C13, C14, C15, C16, C34,C45,C59,C66,C71,C72C75,C74,C76,C79, C82,C83, C88,C89, C93,C94,C95,C96, C44, C56, C74, C75, C79, C80) 26 difusão de conhecimento GAM (D1, D2, D3, D4, D5, D6, D7, D8, D9, D10, D17, D18, D19 (?), D20, D21, D22, D23, D24, D25, D26, D27, D28, D29, D30, D31, D32). 11 theses (F1,F2,F7,F13,F15, F20,F19,F38,F34,F39,F40) 04 website, social media or multimedia products (G15, G16, G22, G26) 03 articles in local or international media (J1, J5, J6)

Analyze how first-person experience research of mental health services users and professionals could help them both evaluate and change their ways of being, in the direction of appreciating autonomy and human rights

15 published papers (A10, A12, A16, A19, A20, A21, A22, A24, A25, A26, A28, A38, A41, A51, A56). 26 conference papers (C12, C17, C18, C19, C21, C22, C23, C24, C25, C27, C35, C36, C39, C41, C42, C43, C52, C55, C56, C57, C58, C65, C67, C77, C78, C81). 04 Book Chapters (E2, E3, E4, E7). 06 Theses (F5, F8, F12, F23, F36, F42)

Project leader, Affiliation Rosana Onocko-Campos, UNICAMP, SP, BR

Rosana Onocko-Campos, UNICAMP, SP, BR

Eduardo Passos, UFF, RJ, BR e André do Eirado Silva, UFF, RJ, BR

Develop, apply and follow-up an evaluation system for CAPS III (including intellectual disability) in the state of São Paulo

45

15 published papers (A3, A5, A8, A11, A13, A15, A33, A37, A39, A42, A45, A47, A48, A49, A52). 02 conference papers (C73, C38) 02 books chapters (E6, E8). 06 theses (F10, F11, F17, F18, F21, F35)

SUBPROJECT: Guia GAM como dispositivo de intervenção e formação em serviços de saúde mental (GAM Guide as a tool for intervention and training in mental health services)

SUBPROJECT: Medicação, autonomia e cidadania no campo da saúde mental: validação do Guia de Gestão Autônoma da Medicação (GAM) no Ceará (Medication, autonomy and citizenship in the field of mental health) SUBPROJETO: Psicofármacos em Crianças e Adolescentes Inseridos na Rede Pública de Saúde Mental nos Municípios de Campinas e Fortaleza. (Psychiatric drug use in children and teenagers of the public mental health subsystem at the cities of Campinas-SP-Brazil and Fortaleza-CE-Brasil) SUBPROJECT: (Knowledge dissemination about GAM)

a) Test the use of the Brazilian version of the GAM guide on intervention groups in community mental health services (CAPS) from the region of Porto Alegre-RS. b) Contribute in the elaboration of the moderator guide, to help the use of the GAM guides. c) Follow and analyze possible effects of participating in intervention groups in mental health professionals training. d) Follow the experience of users moderating such intervention groups, analyzing the effects of their participation in the users-moderators, other group members, and their relationship with their respective mental health services.

10 published papers (A10, A12, A16, A17, A18, A22, A23, A28, A57, A59). 22 conference papers (C3, C4, C6, C7, C21, C25, C26, C27, C28, C29, C30, C31, C32, C33, C40,C44, C46, C47, C48, C49, C60, C64). 16 difusão de conhecimento GAM (D17, D18, D19, D20, D21, D22, D23, D24, D25, D26, D27, D28, D29, D30, D31, D32). 01 book chapter (E1). 06 Theses (F4, F6, F9, F24, F27, F30). 08 website, social media or multimedia products (G7, G10, G11, G18, G19, G20, G22, G26). 02 Articles in local or international media (J5, J6)

Validate the Brazilian version of the GAM guide, considering its multi-centric aspect, through a learning process that questions and considers the wills and needs of mental health users using psychiatric drugs, through the following analytical dimensions: autonomy, citizenship, medicalization and resolubility.

02 published papers (A1, A30). 01 book chapter (E4). 03 theses (F3, F16, F25)

Mirian Parente Monteiro, UFC, CE, BR; Ana Paula Soares Gondim, UFC, CE, BR

a) Analyze the use of psychiatric drugs by children (under 12 years old) and teenagers (between 12 and 19 years of age) in the public mental health subsystem of FortalezaCE-Brazil and Campinas-SP-Brazil. b) Investigate how the health professionals involved in psychiatric drugs prescription and dispensation in both cities relate their practice with drug monitoring actions, clinical guidelines development and rational drug use promotion.

01 submitted paper (B2). 02 conference papers (C50, C51). 02 theses (F26, F31)

Rosana Onocko-Campos, UNICAMP, SP, BR

Dissemination of the knowledge about deployment and effects regarding autonomous medication management processes

16 meetings (D1, D2, D3, D4, D5, D6, D7, D8, D9, D10, D11, D12, D13, D14, D15, D16)

Analice de Lima Palombini, UFRGS, RS, BR

Maria Salete Bessa Jorge, UECE, CE, BR

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Experiência, Narrativa e Conhecimento: a perspectiva dos usuários e a dos psiquiatras (Experience, Narrative and Knowledge: the users and psychiatrists perspective)

Octavio Domont de Serpa Junior, UFRJ, RJ, BR

Projeto Guia do Usuário de Saúde Mental (GUSM) (Project Mental Health User Guide - GUSM)

Nilson de Souza do Nascimento, AFLORE, SP, BR

Projeto Andorinhas (Project Swallows)

Projeto Competências dos Agentes Comunitários de Saúde no processo de desinstitucionalização da loucura (Project Community Health Workers Abilities at the Deinstitutionalisation of Madness) Projeto Gestão Autônoma de Medicamentos com Moradores de Serviços Residenciais Terapêuticos (Project Autonomous Medication Management with Residents of Therapeutic Residential Services) Projeto Conquista de Cidadania: Como se constrói a participação? (Project Conquering Citizenship: How to develop participation?

a) apprehend personal experiences and narratives regarding illness from people with schizophrenia being treated in community mental health services (CAPS); b) apprehend the personal experience of psychiatrists when diagnosing and treating schizophrenia in the public mental health subsystem; c) apprehend how those two experiences and narratives communicate a) elaborate and develop a guide to help and lead, through groups, mental health service users from Campinas at better understanding their treatment and the functioning of their mental health services; b) Empowering mental health users as social actors and agents of social control in mental health services, stimulating their participation in other places of debate and social control for the local health network.

14 published papers (A4, A6, A28, A30, A34, A40, A50, A54, A55, A9, A16, A27, A31, A51). 01 submitted paper (B1). 18 conference papers (C1, C2, C5, C8, C37, C61, C62, C63, C68, C69, C70, C84, C85, C86, C87, C90, C91, C92). 07 Theses (F14,F22, F28,F29, F32, F37, F41)

01 published paper (A57), 02 conference papers (C53, C54)

Carolina Sombini, UNICAMP, SP, BR

Evaluate the communitarian elaboration of inter-sectorial projects that fostered encounter and coexistence, through activities promoting culture, education, leisure and health.

Notable results: further development of public space appropriation; strenghtening of community and interpersonal bonds; social insertion of people with mental problems and general population; presenting the project at conference “2ª Mostra Nacional de Práticas em Psicologia”.

André L. Leite F. Sales, UFRGS, RS, BR

Investigate the actions and abilities of community health workers from the Family Health Strategy, from the Psychiatric Reform perspective.

01 Thesis (F39). 01 website, social media or multimedia product (G12)

Vera Resende UFRGS, RS, BR

Sandra Schmitz, UFRGS, RS, BR

Investigate the medication management with residents of the Therapeutic Residential Services "Morada São Pedro" and "Morada Viamão". From GAM readings, produce collective ideas about Citizenship, Autonomous Medication Management and Life, showing how mental health users can be accepted in society

47

01 published paper (A57)

Projeto A Voz dos Usuários (Project The User's Voice) Projeto Fortalecimento da rede de serviços de atenção psicossocial

Octavio Domont de Serpa Junior, UFRJ, RJ, BR

Enable active and propositional collaboration from mental health services users in psychopathology classes at psychology university courses.

Rosana Onocko-Campos, UNICAMP, SP, BR

Strengthening the psychosocial care services network

48

02 website, social media or multimedia products (G8, G9) 07 political advocacy events (attendance) (K1, K2, K3, K4, K5, K6, K7)

Appendix 4 Bibliography a)

Journal Articles (peer-reviwed)

PUBLISHED 2014 A1) Bezerra, Indara Cavalcante, JORGE, Maria Salete Bessa, Gondim, Ana Paula Soares, Lima, Leilson Lira de, & Vasconcelos, Mardênia Gomes Ferreira. (2014). "Fui lá no posto e o doutor me mandou foi pra cá": processo de medicamentalização e (des)caminhos para o cuidado em saúde mental na Atenção Primária. Interface - Comunicação, Saúde, Educação, 18(48), 61-74. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141432832014000100061&lng=en&tlng= pt. 10.1590/1807-57622013.0650 A2) Dorigatti, Alcir Escocia; Aguilar, Maria Laura ; Madureira, Ricardo M. ; Fonseca, Felipe G. Da; Campos, Rosana Teresa Onocko ; Nascimento, Juliana Luporini . Projeto terapêutico singular no âmbito da saúde mental: uma experiência no curso de graduação em medicina. Revista Brasileira de Educação Médica (Impresso), v. 38, p. 113-119, 2014. http://www.scielo.br/pdf/rbem/v38n1/15.pdf A3) Gama, Carlos Alberto Pegolo da; CAMPOS, Rosana Teresa Onocko; FERRER, Ana Luiza. Saúde mental e vulnerabilidade social: a direção do tratamento. Rev. latinoam. psicopatol. fundam., São Paulo , v. 17, n. 1, Mar. 2014. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141547142014000100006&lng=en&nrm=iso A4) Leal, Erotildes Maria; Dahl, C.; SERPA Jr, Octavio Domont De . A experiência do adoecimento em estudo de narrativas de pessoas com diagnóstico de transtornos do espectro esquizofrênico: um debate sobre a necessidade da releitura da categoria a partir de achados de pesquisa. Ciências Humanas e Sociais em Revista, v. 36, p. 55-67, 2014. http://www.ufrrj.br/SEER/index.php?journal=chsr&page=article&op=view&path%5B%5D=1030 A5) Togni, L. ; Onocko-Campos, Interface entre Deficiência Intelectual e Saúde Mental: revisão hermenêutica. Revista de Saúde Pública (Impresso) , v. 48, p. 532-540, 2014. http://www.scielo.br/pdf/rsp/v48n3/pt_0034-8910-rsp-48-3-0532.pdf 2013 A6) Anastacio, C. C.; Furtado, J. P. . Reabilitação Psicossocial e Recovery: conceitos e influências nos serviços oferecidos pelo Sistema de Saúde Mental. Cadernos Brasileiros de Saúde Mental, v. 4, p. 72-83, 2013. http://incubadora.periodicos.ufsc.br/index.php/cbsm/article/view/2126 A7) Campos, Gastão Wagner De Sousa, Onocko-Campos, Rosana Teresa, & Del Barrio, Lourdes Rodriguez. (2013). Políticas e práticas em saúde mental: as evidências em questão. Ciência & Saúde Coletiva, 18(10), 2797-2805. from

49

http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141381232013001000002&lng=en&tlng= pt. 10.1590/S1413-81232013001000002 A8) Furtado, J. P. ; Onocko Campos, R. T. ; Moreira, M. I. B. ; Trapé, Tl . A elaboração participativa de indicadores para a avaliação em saúde mental. Cadernos de Saúde Pública (ENSP. Impresso) , v. 29, p. 102-110, 2013. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-311X2013000100012 A9) Leal, Erotildes Maria; Serpa Junior, Octavio Domont De . Acesso à experiência em primeira pessoa na pesquisa em Saúde Mental. Ciência e Saúde Coletiva (Impresso) , v. 18, p. 2939-2948, 2013. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1413-81232013001000018 A10) Marques, Cecília de Castro; Palombini, Analice; Passos, Eduardo; Onocko Campos, Rosana Tereza. Sobre mudar de lugar e produzir diferenças – A voz dos usuários de serviços públicos de saúde mental Mnemosine Vol.9, nº1, p. 106-126 (2013) Acesso livre: http://www.fcm.unicamp.br/fcm/sites/default/files/paganex/artigo_mnemosine.pdf A11) Miranda, Lilian ; CAMPOS, Rosana Teresa Onocko . Balizamentos éticos para o trabalho em saúde mental: uma leitura psicanalítica. Revista Latinoamericana de Psicopatologia Fundamental (Impresso) , v. 16, p. 100-115, 2013. http://www.scielo.br/scielo.php?pid=S141547142013000100008&script=sci_arttext A12) Passos, Eduardo. Palombini, Analice de Lima; Onocko Campos, Rosana; Rodrigues, Sandro Eduardo. Melo, Jorge; Milward Maggi, Paula; Castro e Marques, Cecília de; Zanchet, Lívia; Cervo, Michele da Rocha; Emerich, Bruno. Autonomia e cogestão na prática em saúde mental: o dispositivo da gestão autônoma da medicação (GAM). Aletheia 2013 (41). http://www.redalyc.org/articulo.oa?id=115031073003 A13) Rosa, L.C.S. ; Onocko-Campos, Rosana Teresa . Saúde mental e classe social:CAPS um serviço de classe e interclasses. Serviço Social & Sociedade, v. 114, p. 311, 2013. http://www.scielo.br/scielo.php?pid=S0101-66282013000200006&script=sci_arttext A14) Onocko-Campos, Rosana Teresa . Pesquisas em saúde mental: o desafio de pesquisar mudanças e inovações em um campo demarcado por questões ético-políticas. Ciência e Saúde Coletiva (Impresso) , v. 18, p. 2794-2794, 2013. http://www.scielo.br/scielo.php?pid=S141381232013001000001&script=sci_arttext A15) Onocko Campos, R. T. ; Campos, G. W. S. ; Ferrer, A. L. ; Correa, C. R. S. ; Madureira, P. ; Gama, C. A. ; Dantas, D. V. ; Nascimento, R. S. . Avaliação de estratégias inovadoras na organização da Atenção Primária à Saúde em Campinas/SP/Brasil. Revista de Saúde Pública (USP. Impresso) , v. 46, p. 43-50, 2012. http://www.scielo.br/scielo.php?pid=S003489102012000100006&script=sci_arttext A16) Onocko-Campos, Rosana Teresa; Passos, Eduardo; Palombini, Analice De Lima; Santos, Deivisson Vianna Dantas Dos; Stefanello, Sabrina; Gonçalves, Laura Lamas Martins Gonçalves; Andrade, Paula Milward; Borges, Luana Ribeiro. A Gestão Autônoma da Medicação: uma intervenção analisadora de serviços em saúde mental. Ciência e Saúde Coletiva (Impresso), v. 18, n. 10, p. 2889-2898, 2013. http://www.scielo.br/scielo.php?pid=S141381232013001000013&script=sci_arttext

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A17) Onocko-Campos, Rosana Teresa, Palombini, Analice de Lima, Leal, Erotildes, Serpa Junior, Octavio Domont de, Baccari, Ivana Oliveira Preto, Ferrer, Ana Luiza, Diaz, Alberto Giovanello, & Xavier, Maria Angélica Zamora. (2013). Narrativas no estudo das práticas em saúde mental: contribuições das perspectivas de Paul Ricoeur, Walter Benjamim e da antropologia médica. Ciência & Saúde Coletiva, 18(10), 2847-2857., From http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141381232013001000009&lng=en&tlng=pt. 10.1590/S1413-81232013001000009 A18) Palombini, Analice De Lima; Onocko-Campos, Rosana Teresa; Silveira, Marília; Gonçalves, Laura Lamas Martins Gonçalves; Zanchet, Lívia; Xavier, Maria Angélica Zamora; Marques, Cecília De Castro E. Relações entre pesquisa e clínica em estudos em cogestão com usuários de saúde mental. Ciência e Saúde Coletiva (Impresso), v. 18, n. 10, p. 2899-2908, 2013. http://www.scielo.br/pdf/csc/v18n10/v18n10a14.pdf A19) Passos, E.P. ; Carvalho, S. ; Maggi, P. M. A. . Experiência de autonomia compartilhada na saúde mental: o manejo cogestivo na Gestão Autônoma da Medicação. Pesquisas e Práticas Psicossociais, 2013. http://www.google.com.br/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&cad=rja&uact=8&ved =0CB8QFjAA&url=http%3A%2F%2Fwww.ufsj.edu.br%2Fportal2repositorio%2FFile%2Frevistalapip%2FVolume7_n2%2FPassos%2C_Eduardo%253B_Carvalho%2 C_Silvia_Vasconcelos_%2526_Maggi%2C_Paula_Milward_de_Andrade.doc&ei=vNEYVPPNCoS 4ogTS14CYCg&usg=AFQjCNEjjNEkPKUDSu5Fv0r5n_dDfCwKxA&sig2=F5Lg2IDwYjBlhEMPzKoAQ&bvm=bv.75558745,d.cGU A20) Passos, E. & Kastrup, V. Sobre a validação da pesquisa cartográfica: acesso à experiência, consistência e produção de efeitos. Fractal, Rev. Psicol., v. 25 – n. 2, p. 391-414, Maio/Ago. 2013. http://www.scielo.br/scielo.php?pid=S1984-02922013000200011&script=sci_arttext A21) Passos E, Otanari TMC, Emerich BF, Guerini L. O comitê cidadão como estratégia cogestiva em uma pesquisa participativa no campo da saúde mental. Ciência e Saúde Coletiva (Impresso), v. 18, p.2919-2928; 2013. Acesso livre: http://www.scielo.br/scielo.php?pid=S141381232013001000016&script=sci_arttext A22) Passos, E.; Palombini, A. L.; Onocko Campos, R.. Estratégia cogestiva na pesquisa e na clínica em saúde mental. Revista ECOS v. 3, n. 1, p. 4-17, 2013. Acesso Livre: http://www.uff.br/periodicoshumanas/index.php/ecos/article/view/1110 A23) Presotto, Rodrigo Fernando, Silveira, Marília, Delgado, Pedro Gabriel Godinho, & Vasconcelos, Eduardo Mourão. (2013) Experiências brasileiras sobre participação de usuários e familiares na pesquisa em saúde mental. Ciência & Saúde Coletiva,18(10), 2837-2845., from http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141381232013001000008&lng=en&tlng= pt. 10.1590/S1413-81232013001000008. A24) Sade, Christian, Barros, Leticia Maria Renault De, Melo, Jorge José Maciel, & Passos, Eduardo. (2013). O uso da entrevista na pesquisa-intervenção participativa em saúde mental: o dispositivo GAM como entrevista coletiva. Ciência & Saúde Coletiva,18(10), 2813-2824. from http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141381232013001000006&lng=en&tlng=pt. 10.1590/S1413-81232013001000006

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A25) Sade, C.; Ferraz, G.; Machado, J. O ethos da confiança na pesquisa cartográfica: experiência compartilhada e aumento da potência de agir. Fractal, Rev. Psicol., v. 25 – n. 2, p. 281-298, Maio/Ago. 2013. http://www.scielo.br/scielo.php?pid=S1984-02922013000200005&script=sci_arttext A26) Tedesco, S.; Sade, C.; Caliman, L. A entrevista na pesquisa cartográfica: a experiência do dizer. Fractal, Rev. Psicol., v. 25 – n. 2, p. 299-322, Maio/Ago. 2013. http://www.scielo.br/scielo.php?pid=S1984-02922013000200006&script=sci_arttext A27) Vasconcelos, Eduardo Mourão. (2013). Empoderamento de usuários e familiares em saúde mental e em pesquisa avaliativa/interventiva: uma breve comparação entre a tradição anglo-saxônica e a experiência brasileira. Ciência & Saúde Coletiva, 18(10), 2825-2835. from http://www.scielo.br/scielo.php?script=sci_arttext&pid=S141381232013001000007&lng=en&tlng=pt. 10.1590/S1413-81232013001000007. 2012 A28) Campos, Rosana Teresa Onocko; Palombini, Analice De Lima; Silva, André Do Eirado; Passos, Eduardo; Leal, Erotildes Maria; Serpa Júnior, Octávio Domont; Marques, Cecília De Castro; Gonçalves, Laura Lamas Martins; Santos, Deivisson Vianna Dantas; Surjus, Luciana Togni De Lima E Silva; Arantes, Ricardo Lugon; Emerich, Bruno Ferrari; Otanari, Thais Mikie De Carvalho; Stefanello, Sabrina. Adaptação Multicêntrica Do Guia Para A Gestão Autônoma Da Medicação. Interface (Botucatu. Impresso), v. 16, p. 967-980, 2012. http://www.scielo.br/pdf/icse/2012nahead/aop4412.pdf A29) Jorge, Maria Salete Bessa, Campos, Rosana Onocko, Pinto, Antonio Germane Alves, & Vasconcelos, Mardênia Gomes Ferreira. (2012). Experiências com a gestão autônoma da medicação: narrativa de usuários de saúde mental no encontro dos grupos focais em centros de atenção psicossocial. Physis: Revista de Saúde Coletiva, 22(4), 1543-1561. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S010373312012000400015&lng=en&tlng=pt.%2010.1590/S0103-73312012000400015. A30) Lopes, Tatiana Scala, Dahl, Catarina Magalhães, Serpa Jr, Octavio Domont De, Leal, Erotildes M., Campos, Rosana T. Onocko, & Diaz, Alberto Giovanello. (2012). O processo de restabelecimento na perspectiva de pessoas com diagnóstico de transtornos do espectro esquizofrênico e de psiquiatras na rede pública de atenção psicossocial. Saúde e Sociedade, 21(3), 558-571. From http://www.scielo.br/scielo.php?script=sci_arttext&pid=S010412902012000300004&lng=en&tlng=pt. 10.1590/S0104-12902012000300004. A31) Oliveira, Ana Luiza De Oliveira ; Onocko Campos, Rosana ; Severo, Ana Kalliny De Sousa ; Ferreira Júnior, Antonio Rodrigues ; Marques, Cecília De Castro ; CARLOS, D. M. ; SOUSA, G. S. ; CAMPOS, I. O. ; ROSA, L. C. S. ; Surjus, L.T.L.S. ; DIAS, R. C. S. ; GARCIA, R. A. ; FERRAZ, R. O. ; Stefanello, Sabrina ; CAMARGO, S. X. ; LUZ, V. G. . Sobre fazer ciência na pesquisa qualitativa: um exercício avaliativo. Revista de Saúde Pública (USP. Impresso), v. 46, p. 392-394, 2012. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-89102012000200024 A32) Rosa, L.C.S. ; Onocko Campos, R. T. . Etnia e gênero como variáveis sombra na saúde mental. 52

Saúde em Debate, v. 36, p. 648-656, 2012. http://www.scielo.br/pdf/sdeb/v36n95/a17v36n95.pdf 2011 A33) Campos, Rosana Onocko, Gama, Carlos Alberto, Ferrer, Ana Luiza, Santos, Deivisson Vianna Dantas dos, Stefanello, Sabrina, Trapé, Tiago Lavras, Porto, Karime. Saúde mental na atenção primária à saúde: estudo avaliativo em uma grande cidade brasileira. Ciência e Saúde Coletiva (Impresso). , v.16, p.4643 - 4652, 2011. http://www.scielo.br/pdf/csc/v16n12/13.pdf A34) Munõz, N. M. ; Serpa Jr, O.D., ; Leal, Erotildes Maria ; Dahl, Catarina ; Oliveira, I. C. . Pesquisa Clinica em Saúde Mental: o ponto de vista dos usuários sobre a experiência de ouvir vozes. Estudos de Psicologia. Estudos de Psicologia (Natal. Online), v. 16, p. 83-89, 2011. http://www.scielo.br/pdf/epsic/v16n1/a11v16n1.pdf A35) Onocko Campos, R. T. . Fale com eles! o trabalho interpretativo e a produção de consenso na pesquisa qualitativa em saúde: inovações a partir de desenhos participativos.. Physis (UERJ. Impresso), v. 21, p. 1269-1286, 2011. http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-73312011000400006 A36) Onocko Campos, R.T. ; Pesquisa em Saúde Mental no Brasil: through the looking-glass. Ciência e Saúde Coletiva (Impresso), v. 16, p. 2032-2032, 2011. http://www.scielo.br/pdf/csc/v16n4/v16n4a01.pdf

A37) Onocko Campos, R. T. ; Baccari, I. O. P. . A Intersubjetividade no Cuidado à Saúde Mental: narrativas de técnicos e auxiliares de enfermagem de um Centro de Atenção Psicossocial. Ciência & Saúde Coletiva , v. 16, p. 2051-58, 2011. http://www.scielo.br/pdf/csc/v16n4/v16n4a04.pdf A38) Otanari, Tmc; Leal, Em; Onocko Campos, Rt; Palombini, Al; Passos, E. Os efeitos na formação de residentes de psiquiatria ao experimentarem grupos GAM. Revista brasileira de educação médica 2011. - RBEM - ISSN - 0100-5502. http://www.scielo.br/scielo.php?pid=S010055022011000400004&script=sci_arttext A39) Togni, L. ; Onocko Campos, R. T. . A avaliação dos usuários sobre os Centros de Atenção Psicossocial (CAPS) de Campinas. Revista Latinoamericana de Psicopatologia Fundamental (Impresso) , v. 14, p. 122-133, 2011. http://www.scielo.br/scielo.php?pid=S141547142011000100009&script=sci_arttext A40) Vasconcelos, E M . Derechos y empoderamiento de usuarios y familiares en el terreno de la salud mental. Átopos - Salud Mental, Comunidad y Cultura, v. 11, p. 23-44, 2011. http://www.atopos.es/pdf_11/2344_Derechos%20y%20empoderamiento(empowerment)%20de%20 usuarios.pdf

2010 53

A41) Eirado A, Passos E, Fernandes Cva, Guia Fr, Lima Fr, Carvalho Jf Et Al. Estratégias de pesquisa no estudo da cognição: o caso das falsas lembranças. Psicologia & Sociedade, 2010, 22(1): 84-94. http://www.scielo.br/pdf/psoc/v22n1/v22n1a11.pdf A42) Miranda, L. ; Onocko Campos, R. T. . Análise das equipes de referência em saúde mental: uma perspectiva de gestão da clínica. Cadernos de Saúde Pública (ENSP. Impresso) , v. 26, p. 11531162, 2010. http://www.scielo.br/scielo.php?pid=S0102-311X2010000600009&script=sci_arttext A43) Miranda, L. ; Onocko Campos, R. T. . Narrativa de pacientes psicóticos: notas para um suporte metodológico de pesquisa. Revista Latinoamericana de Psicopatologia Fundamental (Impresso) , v. 13, p. 441-456, 2010. http://www.scielo.br/pdf/rlpf/v13n3/a05v13n3.pdf A44) Rodrigues, J ; Vasconcelos, E M ; Spricigo, J. S. ; Santos, Sma . Formação Política dos Integrantes de uma Associação de Usuários de Saúde Mental. Cadernos Brasileiros de Saúde Mental, v. 2, p. 213-224, 2010. http://incubadora.periodicos.ufsc.br/index.php/cbsm/article/view/1116 A45) Onocko Campos, Rt; Miranda, L.; Ferrer, Al; Gama, Cap; Diaz, Ar; Gonçalves, Ll; Trapé, Tl. Oficinas de construção de indicadores e dispositivos de avaliação: uma nova técnica de consenso. Estudos e Pesquisas em Psicologia (online), V 10, p. 221-41, 2010. http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1808-42812010000100015&nrm=iso 2009 A46) Diaz, AR ; Onocko Campos, R. T. . La admisíon en servicios sustitutivos al manincomio. Revista de Psicoanálisis, v. 1, p. 69-76, 2009. http://www.fcm.unicamp.br/fcm/publicacoes/artigos A47) Ferrer, A. L., Onocko Campos, R. O trabalho nos centros de atenção psicossocial de Campinas/SP: um estudo hermenêutico - narrativo sobre o sofrimento psíquico dos trabalhadores. Cadernos Brasileiros de Saúde Mental. , v.1, p.9 22, 2009. http://incubadora.periodicos.ufsc.br/index.php/cbsm/article/view/1123 A48) Gama, Carlos Alberto Pegolo Da ; Onocko Campos, R.T. . Saúde Mental na Atenção Básica Uma pesquisa bibliográfica exploratória em periódicos de saúde coletiva (1997-2007). Cadernos Brasileiros de Saúde Mental, v. I, p. 2, 2009. http://www.cbsm.org.br/v1n2/artigos/artigo8.pdf A49) Figueiredo, Mariana Dorsa ; Onocko Campos, R. T. . Saúde Mental na atenção básica à saúde de Campinas, SP: uma rede ou um emaranhado? Ciência & Saúde Coletiva , v. 14, p. 129-138, 2009. http://www.scielo.br/scielo.php?pid=S1413-81232009000100018&script=sci_abstract&tlng=pt A50) Leal, Erotildes Maria ; serpa Jr, O.D., . Psicopatologia e Reforma Psiquiátrica: uma experiência de ensino protagonizada por quem vivencia o sofrimento psíquico. Caderno Saúde Mental, v. 2, p. 57-65, 2009. http://coleciona-sus.bvs.br/lildbi/docsonline/get.php?id=313 A51) Onocko Campos, R. T. ; Furtado, J. P. ; Passos, E. ; Ferrer, A.L. ; Miranda,L. ; Gama, Carlos Alberto Pegolo. Avaliação da rede de centros de atenção psicossocial: entre a saúde coletiva e a saúde mental. Revista de Saúde Pública (ENSP. Impresso), v. 43, p. 16-22, 2009 http://www.scielo.br/pdf/rsp/v43s1/749.pdf 54

A52) Onocko Campos, R. T. . Pesquisa avaliativa de uma rede de Centros de Atenção Psicossocial: entre a saúde coletiva e a saúde mental. Cadernos Brasileiros de Saúde Mental, v. 1, p. 23, 2009. http://incubadora.periodicos.ufsc.br/index.php/cbsm/article/view/1018 A53) Onocko Campos, R. T. . Elas continuam loucas: de que serviria aos serviços públicos de saúde uma releitura dos textos de Freud sobre a histeria? Boletim da Saúde, v. 23, p. 149-161, 2009. http://xa.yimg.com/kq/groups/23478682/1082316032/name/LIVRO A54) Vasconcelos, E M . Perfil das organizações de usuários e empoderamento de usuários, familiares e trabalhadores em saúde mental no Brasil. Cadernos Brasileiros de Saúde Mental, v. 1, p. 1000:39331-PB, 2009. http://www.esp.rs.gov.br/img2/06_Eduardo_Mourao_Vasconcelos.pdf ACCEPTED A55) BACCARI, I. O. P. ; ONOCKO CAMPOS, R. T. ; STEFANELLO, S. . Recovery: revisão sistemática de um conceito. Ciência e Saúde Coletiva (Impresso), 2014. http://www.cienciaesaudecoletiva.com.br/artigos/artigo_int.php?id_artigo=14078 A56) EMERICH, BF; ONOCKO CAMPOS R, PASSOS E. Direitos na loucura: o que dizem usuários e gestores dos Centros de Atenção Psicossocial (CAPS). Interface (Botucatu), v. 18, n. 51, out/dez, 2014. No prelo. Acesso livre quando publicado. A57) FLORES, A. A. MUHAMMAD A. H. CONCEICAO, A. P. NOGUEIRA, A. PALOMBINI, A. L. MARQUES, C. C. E. PASSOS, E. SANTOS, E. S. MEDEIROS, F. SOUSA, G. S. MELO, J. ANDRADE, J. C. S. DIEDRICH, L. F. GONCALVES, L. L. M. SURJUS, L. T. L. E. S. LIRA, L. M. XAVIER, M. A. Z. NASCIMENTO, M. R. SILVEIRA, M. NASCIMENTO, N. S. OST, P. R. OLIVEIRA, R. F. NASCIMENTO, R. PRESOTTO, R. F. HOFF, S. M. S. , ONOCKO CAMPOS, R. T. OTANARI, T. M. C. A experiência de produção de saber no encontro entre pesquisadores e usuários de serviços públicos de saúde mental: a construção do Guia Gam brasileiro. No prelo para Caderno HumanizaSUS - VOLUME 5 – SAÚDE MENTAL. A58) RODRIGUEZ, L ; ONOCKO-CAMPOS, Rosana Teresa ;. ; STEFANELLO, S. ; Otanari, TMC ; DANTAS, D. V. . 'Human Rights and the Use of Psychiatric Medication'. Journal of Public Mental Health. A59) SILVEIRA, M, PALOMBINI. A. e MORAES, M. Escrever COM: uma experiência éticopolítica de pesquisa. Revista Mnemonise (UERJ). No prelo. Acesso livre quando publicado.

b)

Journal Articles (submitted)

B1) Pereira, Mariana Barbosa; Leal, Erotildes Maria e Serpa Jr, Octávio Domont de. Insight em pessoas com diagnóstico de esquizofrenia. Estudo de narrativas. Revista Latinoamericana de Psicopatologia Fundamental. B2) Gondim, Ana Paula Soares; Campos, Rosana Onocko; Monteiro, Mirian Parente; Maciel, Ana Paula Pessoa; Costa, Ana Kellen Mota da Almeida; Duarte, Renata de Paula. Características sociais 55

e assistenciais dos encaminhamentos aos serviços de Saúde Mental infantojuvenil. Revista Estudos de Psicologia.

c)

Conference Papers

2014 C1) LEAL, EROTILDES MARIA; SERPA JR, OCTAVIO DOMONT; MALAJOVICH, NURIA; DAHL, CATARINA; PEREIRA, MARIANA BARBOSA; DIAZ, ALBERTO G.; ONOCKO, ROSANA E MONTANHER, MONICA KRIECK. Adoecimento de pessoas com diagnóstico de esquizofrenia no contexto dos serviços de atenção psicossocial - CAPS: a experiência de quem vive e a perspectiva dos psiquiatras. Apresentação de trabalho na modalidade Comunicação Oral no Colóquio de Ciências Sociais e Saúde. Março de 2014. Universidade Estadual de Campinas (Unicamp) - Campinas/SP C2) RICCI, Ellen. Cotidiano esquizofrenia: Narrativas de usuários de Centros de Atenção Psicossocial (CAPS) a partir das experiências de adoecimento. Apresentação de trabalho na modalidade comunicação oral no 4° Congresso Brasileiro de Saúde Mental Abrasme. Setembro de 2014 Universidade Nilton Lins - Manaus. AM 2013 C3) GUERRA, SANDRA; PALOMBINI, ANALICE DE LIMA. Receituário Mais que Especial: uma intervenção urbana na disseminação de modos de pensar a saúde mental. Salão de Iniciação Científica da UFRGS. Porto Alegre, 2013. LINK: http://hdl.handle.net/10183/92916 C4) PALOMBINI, ANALICE E GRUPO GAM RS. Roda de Conversa sobre a GAM. Mental Tchê, São Lourenço do Sul. Maio de 2013. C5) PEREIRA, MARIANA BARBOSA; LEAL, EROTILDES MARIA; SERPA JR OCTAVIO DOMONT; ONOCKO CAMPOS, ROSANA. Insight na perspectiva de indivíduos diagnosticados com esquizofrenia em Centros de Atenção Psicossocial. Apresentação de trabalho na modalidade Comunicação Oral no VI Congresso Brasileiro de Ciências Sociais e Humanas em Saúde. Novembro de 2013.Universidade do Estado do Rio de Janeiro (UERJ) - Rio de Janeiro/RJ C6) SILVEIRA, MARÍLIA; DERMAN, MARIA LÚCIA. Apresentação da GAM no Congresso Regional da AFAB – Associação de Familiares e amigos dos Bipolares. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Santa Maria/RS, setembro/2013. C7) ZAMBILLO, MARCIANA; PALOMBINI, ANALICE DE LIMA. Ando e penso com mais de um: a ‘autonomia’ em saúde mental via estratégia GAM. Apresentação de trabalho. XVII Encontro Nacional de Psicologia Social da ABRAPSO. Universidade Federal de Santa Catarina, Florianópolis, 2013. LINK: http://www.encontro2013.abrapso.org.br/relatorio/cadernoresumos 2012

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C8) BACCARI, I. O. P. ; ONOCKO CAMPOS, R. T. . Recovery: evolução de um conceito. In: III Congresso Brasileiro de Saúde Mental - Aperreios e Doidices: Saúde Mental como diversidade, subjetividade e luta política, 2012, Fortaleza. Anais do III Congresso Brasileiro de Saúde Mental, 2012. C9) BLAIS, DENISE; RICHARD, PIERRETTE; DEL BARRIO, LOURDES RODRIGUEZ; CLÉMENT, MICHÈLE; SANTOS, DEIVISSON VIANNA DANTAS; STEFANELLO, SABRINA. Oficina sobre a GAM. “Faire de la citoyenneté un enjeu majeur pour la recherche et l’action en santé mentale” XVI Colloque de L’Association Québécoise pour la Réadaptation Psychosociale, em Québec, Québec, Canada, 31 de outubro a 2 de novembro de 2012. C10) BORGES, L. R. ; STEFANELLO, S. ; SANTOS, D. V. D. ; CAMPOS, R. O. . GRUPOS DE GESTÃO AUTÔNOMA DE MEDICAMENTOS PSICOTRÓPICOS UM INDUTOR DE REFLEXÃO E RECONHECIMENTO DA AUTONOMIA DOS USUÁRIOS PELOS TRABALHADORES DA SAÚDE.. In: 10º Congresso Brasileiro de Saúde Coletiva, 2012, Porto Alegre-RS. 10º Congresso Brasileiro de Saúde Coletiva, 2012. C11) BORGES, L. R. ; STEFANELLO, S. ; SANTOS, D. V. D. ; CAMPOS, R. O. . A ESTRATÉGIA DE GESTÃO AUTONOMA DA MEDICAÇÃO (GAM) EM GRUPOS DE INTERVENÇÃO (GI) NA ATENÇÃO BÁSICA DESVELANDO O BIOPODER PRESENTE NOS PROCESSOS DE CUIDADO.. In: 10º Congresso Brasileiro de Saúde Coletiva, 2012, Porto Alegre-RS. 10º Congresso Brasileiro de Saúde Coletiva, 2012. C12) CARVALHO, J.; PRATA, B.; PASSOS, E. O sentido de autonomia no dispositivo de Gestão Autônoma da Medicação (GAM). 10º Congresso Internacional da Rede Unida - Educação, saúde e participação: a ousadia de construir redes produtoras de vida no cotidiano. Centro de Convenções Sul América. Rio de Janeiro, RJ. 6 a 9 de Maio de 2012. C13) CYR, CÉLINE; FORTIN, DENISE; DEL BARRIO, LOURDES RODRIGUEZ; STEFANELLO, SABRINA; SANTOS, DEIVISSON VIANNA DANTAS. Oficina sobre a GAM :“Mettre le traitement pharmacologique au servisse du mieux-être dans la communauté” XVI Colloque de L’Association Québécoise pour la Réadaptation Psychosociale, em Québec, Québec, Canada, 31 de outubro a 2 de novembro de 2012. C14) GONÇALVES, L. L. M. ; ONOCKO CAMPOS, R. ; Vianna, D. ; STEFANELLO, S. ; MARQUES, C. ; BORGES, L. R. ; SOUZA, G. S. . A Gestão Autônoma da Medicação como instrumento de formação na área da Saúde Mental. 2012. (Apresentação de Trabalho/Congresso). 3º Congresso Brasileiro de Saúde Mental ABRASME. São Paulo, 2012. C15) GONÇALVES, L.L.M.; ONOCKO CAMPOS, R. A Gestão Autônoma da Medicação numa experiência com usuários militantes da saúde mental. V Congresso de Pesquisa Qualitativa em Saúde - Lisboa 2012 C16) GONÇALVES, L.L.M.; ONOCKO CAMPOS, R. Participação e produção de autonomia: uma experiência de gestão autônoma da medicação (GAM) com usuários militantes. X Congresso Brasileiro de Saúde Coletiva, 2012, Porto Alegre. 57

C17) MELO, J.; RENAULT, L.; SADE, C.; PASSOS, E. O manejo cogestivo e a promoção da participação nos grupos de gestão autônoma da medicação - GAM-BR”. 10º Congresso Internacional da Rede Unida - Educação, saúde e participação: a ousadia de construir redes produtoras de vida no cotidiano. Centro de Convenções Sul América. Rio de Janeiro, RJ. 6 a 9 de Maio de 2012. C18) MELO, J. O manejo cogestivo e sua operação na estratégia da gestão autônoma da medicação no brasil. III Congresso Brasileiro de Saúde Mental (ABRASME)- Aperreios e Doidices: saúde mental como diversidade, subjetividade e luta política. Centro de Convenções do Ceará. Fortaleza – CE. 07 a 09 de Junho de 2012. C19) ONOCKO-CAMPOS, ROSANA TERESA ; STEFANELLO, S. ; SANTOS, DEIVISSON VIANNA DANTAS DOS ; GONÇALVES, LAURA LAMAS MARTINS ; PALOMBINI, ANALICE DE LIMA ; PASSOS, EDUARDO ; LEAL, EROTILDES MARIA ; SERPA JUNIOR, O. D. ; OTANARI, THAIS MIKIE DE CARVALHO ; MARQUES, C. ; SURJUS, L. T. ; EMERICH, BRUNO FERRARI ; ARANTES, R. L. . Adaptação Multicêntrica do Guia para a Gestão Autônoma da Medicação. 2012.V Congresso de Pesquisa Qualitativa em Saúde - Lisboa 2012 C20) ONOCKO CAMPOS R, FURTADO JP, SURJUS LTMS, KINKER F, TRAPÉ TL, CHEBLI SM, EMERICH BF. Pesquisa avaliativa: indicações para avaliação e monitoramento de serviços de saúde mental.. V Congresso Ibero - Americano de Pesquisa Qualitativa em Saúde. Lisboa 2012. C21) ONOCKO CAMPOS, R; PALOMBINI, AL; PASSOS, E; ZANCHET, L; SILVEIRA, M; XAVIER, MAZ. Desdobramentos subjetivos a partir das narrativas no uso do Guia GAM em Centros de Atenção Psicossocial (CAPS) do Rio Grande do Sul. III Congresso Brasileiro 9 de junho de 2012. C22) RENAULT, L.; SADE, C.; PASSOS, E. O papel da análise de dados em uma pesquisa participativa: o caso da Gestão Autônoma de Medicamentos (GAM). 10º Congresso Internacional da Rede Unida - Educação, saúde e participação: a ousadia de construir redes produtoras de vida no cotidiano. Centro de Convenções Sul América. Rio de Janeiro, RJ. 6 a 9 de Maio de 2012. C23) RENAULT, L.; CARVALHO, J.; PASSOS, E. A GAM: os desafios da participação em pesquisa. 10º Congresso Internacional da Rede Unida - Educação, saúde e participação: a ousadia de construir redes produtoras de vida no cotidiano. Centro de Convenções Sul América. Rio de Janeiro, RJ. 6 a 9 de Maio de 2012. C24) RENAULT, L.; MELO, J.; SADE, C.; RODRIGUES, S.; CARVALHO, J.; GUERINI, L.; PRATA, B.; MILWARD, P.; PASSOS, E. Autonomia e direitos humanos: validação do guia de gestão autônoma da medicação (GAM). III Congresso Brasileiro de Saúde Mental (ABRASME)- Aperreios e Doidices: saúde mental como diversidade, subjetividade e luta política. Centro de Convenções do Ceará. Fortaleza – CE. 07 a 09 de Junho de 2012. C25) PALOMBINI, ANALICE E GRUPO GAM-RS, ROSANA ONOCKO CAMPOS, EDUARDO PASSOS E CONVIDADOS. Organização de evento da Pesquisa GAM no RS: Nós entre os 58

lugares: experiências de disseminação do conhecimento. Universidade Federal do Rio Grande do Sul, Porto Alegre. 16 de março de 2012. C26) PALOMBINI, A.; XAVIER, MAZ; SILVEIRA, M. Rodas de Conversa articulando psicanálise e Saúde Coletiva sobre a Gestão Autônoma de Medicamentos (GAM). Escola de Saúde Pública, Porto Alegre. 11 de abril de 2012. C27) SANTOS, D. V. D.; ONOCKO CAMPOS, R.; PALOMBINI, A. L.; PASSOS, E.; LEAL, E. M.; GONCALVES, L. L. M.; SURJUS, L. T. L. E. S.. A Gestão Autônoma da Medicação: instrumento para empowerment dos usuários ante a medicalização. 3º Congresso Brasileiro de Saúde Mental ABRASME. São Paulo, 2012. C28) ZANCHET, LÍVIA; XAVIER, MARIA ANGÉLICA; SILVEIRA, MARÍLIA. Organização do Evento da Pesquisa GAM no RS, Nós entre os lugares: experiências de disseminação do conhecimento. Universidade Federal do Rio Grande do Sul, Porto Alegre. 16 de março de 2012. C29) ZANCHET, L; XAVIER, MAZ; PALOMBINI, AL. A estratégia da Gestão Autônoma da Medicação e a experiência de pesquisa no Brasil – RS. Aula no curso de especialização em Saúde Mental Coletiva da UFRGS – EDUCASAÚDE. Faculdade de Educação/UFRGS, Porto Alegre. 12 de setembro de 2012. C30) ZANCHET, L; SILVEIRA, M. Apresentação da Estratégia da Gestão Autônoma da Medicação. Instituto Pichón Rivière, Porto Alegre. 17 de abril de 2012.

2011

C31) ANDRADE, JÚLIO. A construção do Guia de Gestão Autônoma da Medicação no Brasil – ARUC, pesquisa e participação. Apresentação em evento científico. Encontro Diálogos em Saúde Mental e Cidadania. Universidade Federal Fluminense Programa de Pós-graduação em Psicologia, Grupo de Pesquisa sobre Gestão Autônoma da Medicação (GAM). 4 de novembro de 2011, Rio de Janeiro, Brasil. C32) ANDRADE, JCS. Participação no IV Curso de Formação de Facilitadores de Grupos de Ajuda e Suporte Mútuo em Saúde Mental, de 01 a 02 de julho de 2011, duração de 16h. Rio de Janeiro. Org. Projeto Transversões da Escola de Serviço Social da UFRJ. C33) ANDRADE, JCS. Participação no curso de extensão “Vivências em Redes Sociais: familiarização com o uso das tecnologias de informação e comunicação”, 17 de junho de 2011, carga horária 8h. Rio de Janeiro. Org. Laboratório de Tecnologias Cognitivas do Núcleo de Tecnologia Educacional para a Saúde (NUTES/UFRJ). C34) BACCARI, I.O.P.; ONOCKO CAMPOS, R. T. Potencialidades da Utilização da Concepção Narrativa de Ricoeur na Pesquisa em Saúde Coletiva. Apresentação em evento científico. I Conferência Latino Americana sobre Paul Ricoeur, Rio de Janeiro: novembro de 2011. C35) CARVALHO, JÚLIA. Multiplicações do GAM 2: O processo de validação do GGAM no CAPS de São Pedro d'Aldeia. Apresentação em evento científico Encontro Diálogos em Saúde Mental e Cidadania. Universidade Federal Fluminense Programa de Pós-graduação em Psicologia, Grupo de 59

Pesquisa sobre Gestão Autônoma da Medicação (GAM). 4 de novembro de 2011, Rio de Janeiro, Brasil. C36) CARVALHO, J. A experiência com os direitos humanos a partir da noção de contração de grupalidade. Diálogos em Saúde Mental e Cidadania. Evento do grupo de pesquisa GAM-BR. Universidade Federal Fluminense, Niterói, RJ. 4 de Nov., 2011. C37) DAHL, C. M. ; SERPA JR., O. D. ; LEAL, E. M. ; ONOCKO-CAMPOS, R. T. ; PITTA,A.M.F. ; MUNOZ, N. M. ; LOPES, T. S. ; DIAZ, A. G. ; PEIXOTO, M. ; ZAPPONI, R. B. ; Mourão,ACN. O Processo de Restabelecimento na perspectiva de Pessoas com Transtornos Mentais Graves em Tratamento nos Centros de Atenção Psicossocial. Apresentação em evento científico. In: V Congresso Brasileiro de Ciências Humanas e Sociais em Saúde, 2011, São Paulo. O Lugar das Ciências Humanas no campo da Saúde Coletiva. Rio de Janeiro : ABRASCO, 2011. C38) FURTADO, JUAREZ P.; ONOCKO CAMPOS, ROSANA; SURJUS, LUCIANA TOGNI DE LIMA E SILVA; TRAPÉ, THIAGO; EMERICH, BRUNO; CHEBLI, STELLA; KINKER, FERNANDO. Elaboração Participativa De Indicadores Para Os Caps III Paulistas. Trabalho apresentado em congresso científico. XII Congresso Paulista de Saúde Pública, de 22 a 26/10/2011. C39) IGNÁCIO, LVMG; PALOMBINI, AL; ONOCKO CAMPOS, R; PASSOS, E; LEAL, EM; SERPA JR, OD; SILVA, AE; MARQUES, CC; GONALVES, LLM. Guia da Gestão Autônoma da Medicação: uma ferramenta para a produção de autonomia e (re)afirmação de direitos dos usuários dos serviços de saúde mental. Apresentação de trabalho em evento científico. 31ª. Semana Científica do Hospital de Clínicas de Porto Alegre. 4 a 8 de julho de 2011. http://www.hcpa.ufrgs.br/downloads/GPPG/resumos_4af_06julho.pdf C40) MEDEIROS, RAFAEL GIL. Processos de tutela e domesticação da subjetividade drogada. Apresentação de trabalho em evento científico. Seminário Drogas: Subjetividade, Autonomia e Tutela, promovida pelo Conselho Regional de Psicologia de Pernambuco nos dias 13 e 14 de Junho de 2011. http://www.crppe.org.br/upload/anexos/Programação.pdf#CRP/PE C41) MELO J, PASSOS E, EIRADO A, ROQUETTE R, PRATA B, BRAUNE M. “Autonomia e direitos humanos no compartilhamento da experiência da medicação: o dispositivo GAM” Apresentação de trabalho científico no 7º Congresso Norte Nordeste de Psicologia (CONPSI 2011). C42) MELO, JORGE. Multiplicações do GAM 2: O processo de validação do GGAM no CAPS de São Pedro d'Aldeia. Apresentação e organização de evento científico Encontro Diálogos em Saúde Mental e Cidadania. Universidade Federal Fluminense Programa de Pós-graduação em Psicologia, Grupo de Pesquisa sobre Gestão Autônoma da Medicação (GAM). 4 de novembro de 2011, Rio de Janeiro, Brasil. C43) MELO, J. Participação, Manejo e Grupalidade. Diálogos em Saúde Mental e Cidadania. Evento do grupo de pesquisa GAM-BR. Universidade Federal Fluminense, Niterói, RJ. 4 de Nov., 2011. C44) MUHAMMAD, ADRIANA HASHEM Narrativa-Crítica Do Grupo De Intervenção: Gestão Autônoma Da Medicação. Apresentação em evento científico.. ESPECIALIZAÇÃO EM EDUCAÇÃO E SAÚDE MENTAL COLETIVA, UFRGS, São Leopoldo, RS, Brasil, 2011.

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2010

C66) BACCARI, I. O. P. ; ONOCKO CAMPOS, R. T. . Narrativas de Experiência: a produção de Feitos e Efeitos. In: XVIII Congresso Interno de Iniciação Científica da UNICAMP, 2010, Campinas. Anais do XVIII Congresso Interno de Iniciação Científica da UNICAMP, 2010. http://www.prp.unicamp.br/pibic/congressos/xviiicongresso/paineis/033405.pdf C67) BATH MF, BRAUNE M, MILWARD P. “Autonomia e direitos humanos na experiência em primeira pessoa de técnicos e usuários em serviço de saúde mental: a experiência da Gestão Autônoma da Medicação (GAM)”. Apresentação de trabalho no XX Seminário de Iniciação Científica e Prêmio UFF Vasconcellos Torres de Ciência e Tecnologia (2010) C68) DAHL, C. M. ; SERPA JR., O. D. ; LEAL, E. M. ; ONOCKO-CAMPOS, R. T. ; PITTA,A.M.F. ; MUNOZ, N. M. ; LOPES, T. S. ; DIAZ, A. G. ; PEIXOTO, M. ; ZAPPONI, R. B. ; MOURÃO, ACN; BACCARI, I.,BARR,R.A. Apresentação em evento científico. Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário. In: II Congresso Brasileiro de Saúde Mental Rio de Janeiro, junho de 2010 (comunicação oral) C69) DAHL, C. M. ; SERPA JR., O. D. ; LEAL, E. M. ; ONOCKO-CAMPOS, R. T. ; PITTA,A.M.F. ; MUNOZ, N. M. ; LOPES, T. S. ; DIAZ, A. G. .Experiência, Narrativa e Conhecimento: a perspectiva do psiquiatra e a do usuário. In: XVIII Congresso Brasileiro de Psiquiatria, 2010, Fortaleza. XXVIII Congresso Brasileiro de Psiquiatria: Ciência e Compromisso Social, 2010. (Apresentação de pôster em evento científico) Equipes: Unicamp e UFRJ. C70) DAHL, C. M. ; SERPA JR., O. D. ; LEAL, E. M. ; ONOCKO-CAMPOS, R. T. ; PITTA,A.M.F. ; MUNOZ, N. M. ; LOPES, T. S. ; DIAZ, A. G. ; PEIXOTO, M. ; ZAPPONI, R. B. ; Mourão,ACN;BACCARI, I.,BARR,R.A. Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário. In: II Congresso Brasileiro de Saúde Mental Rio de Janeiro, junho de 2010. Equipes: Unicamp e UFRJ. C71) DEIVISSON VIANNA, ROSANA ONOCKO AND LAURA GONÇALVES. Mental health evaluative research: instruments to improve psychotropic drugs’ use and training of mental health workers. Apresentação oral em congresso. .3ND QUALITATIVE RESEARCH ON MENTAL HEALTH, NOTTINHAM, UK, 28 DE AGOSTO A 01 DE SETEMBRO DE 2010 http://www.nottingham.ac.uk/sociology/events/qrmh/qrmh3/parallel-streams/professionalsperspectives.aspx C72) EMERICH, BRUNO FERRARI. Avaliativa De Saúde Mental: Instrumentos Para A Qualificação Da Utilização De Psicofármacos E Formação De Recursos Humanos. Apresentação em congresso cientifico. II CONGRESSO BRASILEIRO DE SAÚDE MENTAL, UERJ, Rio de Janeiro-RJ, 3 a 5 de junho de 2010. C73) FERRER AL, ONOCKO CAMPOS RT. Mental Health Care in the Basic Health Care System: understanding the processes of user embracement, continuity of Patient Care, and assuming responsibility among professionalsand patients. In: XV Congress of the World Federation of Occupational Therapists. 4-7 de Maio de 2010, Santiago/Chile. Comunicação oral em evento científico. 63

C74) GODOY, MARIA GABRIELA CURUBETO Gestão Autônoma da Medicação. Apresentação de trabalho em congresso científico. 9º Congresso Nacional da Rede UNIDA . Local: Campus Centro da UFRGS, Porto Alegre. Data: 18 a 21 de julho de 2010. C75) GODOY, MARIA GABRIELA CURUBETO. Gestão Autônoma da Medicação. Apresentação de trabalho em congresso científico. IV Congresso Ibero-americano de Pesquisa Qualitativa em Saúde – Local: Fortaleza/CE - Brasil. Data: 8 a 11 de setembro de 2010. C76) GONÇALVES, LAURA. PESQUISA AVALIATIVA DE SAÚDE MENTAL: INSTRUMENTOS PARA A QUALIFICAÇÃO DA UTILIZAÇÃO DE PSICOFÁRMACOS E FORMAÇÃO DE RECURSOS HUMANOS. Apresentação em evento cientifico. IV CONGRESSO IBERO-AMERICANO DE PESQUISA QUALITATIVA EM SAÚDE, FORTALEZA-CE, 8 a 11 de setembro de 2010. C77) MARQUES, CECÍLIA DE CASTR; CERVO, MICHELE; VARGAS, ÉVERSON RACH PALOMBINI, ANALICE DE LIMA; ONOCKO CAMPOS, ROSANA TERESA; PASSOS, EDUARDO; LEAL, EROTILDES; SERPA, OCTAVIO. Pesquisa Avaliativa De Saúde Mental: Instrumentos Para A Qualificação Da Utilização De Psicofármacos E Formação De Recursos Humanos. Trabalho apresentado em Seminário científico. I Seminário Internacional de Análise Institucional e Saúde Coletiva, UFF, 2010. C78) MARQUES, CECÍLIA DE CASTRO; PALOMBINI, ANALICE DE LIMA; CAMPOS, ROSANA TERESA ONOCKO, PASSOS, EDUARDO; LEAL, EROTILDES; SERPA, OCTAVIO; CERVO, MICHELE; VARGAS, ÉVERSON RACH; ZANCHET, LÍVIA; XIMENDES, ALEXANDRA MARIA; GODOY, MARIA GABRIELA CURUBETO. Pesquisa Avaliativa De Saúde Mental: Instrumentos Para A Qualificação Da Utilização De Psicofármacos E Formação De Recursos Humanos. Trabalho apresentado em congresso científico. In: IX Congresso Internacional de Salud Mental y Derechos Humanos, Universidad Popular Madres de la Plaza de Mayo, Buenos Aires, 2010. C79) MARQUES, C. C (Diferenças) A utopia no movimento da reforma psiquiátrica. Seminário desfazer a forma – Utopia, arte e psicanálise, UFRGS, Porto Alegre, 2010. Trabalho apresentado em Seminário cientifico. C80) MARQUES, C. C.; PALOMBINI, A. Entre nós : Sobre mudar de lugar e produzir diferenças. Trabalho apresentado em seminário científico. Interlocuções sobre ética na pesquisa: que políticas apostamos? Universidade Federal Fluminense - UFF, 2010. C81) ONOCKO CAMPOS, R. ; Vianna, D. ; GONÇALVES, L. L. M. ; SURJUS, L. T. ; PASSOS, E. ; Leal, E. ; SERPA JUNIOR, O. D. ; EMERICH, B. ; OTANARI, T. M. C.; PALOMBINI, A. L. ; GODOY, M. G. C. . Pesquisa Avaliativa de Saúde Mental: instrumentos para a qualificação da utilização de psicofármacos e formação de recursos humanos. 2010. IV Congresso de Pesquisa Qualitativa em Saúde - Fortaleza 2010. C82) ONOCKO CAMPOS RT, GONÇALVES L, SURJUS LTLS, SANTOS DVD, EMERICH B, OTANARI TMC. PESQUISA AVALIATIVA DE SAÚDE MENTAL: INSTRUMENTOS PARA A QUALIFICAÇÃO DA UTILIZAÇÃO DE PSICOFÁRMACOS E FORMAÇÃO DE RECURSOS HUMANOS. Apresentação em evento cientifico. SEMANA DE ESTUDOS DE PSICOLOGIA DA PONTIFÍCIA UNIVERSIDADE CATÓLICA DE CAMPINAS, setembro de 2010. 64

C83) SANTOS, ES. Participação do IV Encontro de Arte & Saúde Mental – O Paradigma Estético na Clínica Nise da Silveira, de 23 a 24 de setembro de 2010. Rio de Janeiro. Org. Espaço Artaud, Núcleo de Estudo e Intervenção em Saúde da Universidade Federal de São João del Rei e Instituto de Psicologia da Universidade Estadual do Rio de Janeiro. C84) SERPA JUNIOR, OCTAVIO DOMONT DE; LEAL, EROTILDES MARIA; ONOCKO CAMPOS, ROSANA TERESA; PITTA, ANA MARIA FERNANDES; MUÑOZ, NURIA MALAJOVICH; SCALA, TATIANA LOPES; DIAZ, ALBERTO GIOVANELO; DAHL, CATARINA MAGALHÃES. Mesa Redonda: Experience, narrative and knowledge: the perspective of the user and of the psychiatrist. Trabalho apresentado em congresso científico. Third Qualitative Research on Mental Health Conference (Nottingham, agosto 2010) C85) SERPA JUNIOR,OD; LEAL,EM; ONOCKO CAMPOS, RT; PITTA, AMF; MUÑOZ,NM; LOPES,TS ;ALBERTO DIAZ,AG; DAHL, CM. Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário. Apresentação de pôster em congresso. XXVIII Congresso Brasileiro de Psiquiatria (Fortaleza, Outubro de 2010) (Pôster) C86) SERPA JUNIOR,OD; LEAL,EM; ONOCKO CAMPOS, RT; PITTA, AMF; MUÑOZ,NM; LOPES,TS ;ALBERTO DIAZ,AG; DAHL,CM; BARROS,RA; BACCARI,I; ZAPPONI,R; PEIXOTO,MM. Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário. Apresentação de pôster em congresso. II Congresso Brasileiro de Saúde Mental (Rio de Janeiro, junho de 2010) (Pôster) C87) SERPA JR, OTAVIO DOMONT. Mesa redonda: Experiência, narrativa e conhecimento: a perspectiva do usuário e a do psiquiatra. Trabalho apresentado em congresso científico. XXVIII Congresso Brasileiro de Psiquiatria (Fortaleza, Outubro de 2010) C88) SURJUS, Luciana Togni de Lima e Silva. Gestão Autônoma de Medicação. Trabalho apresentado em congresso científico. II Congresso Brasileiro de Saude Mental, Rio de Janeiro-BR – 2010. C89) SURJUS, Luciana Togni de Lima e Silva. Mental Health Evaluative research: instruments to improve psychotropic drugs use and training of mental health workers. Trabalho apresentado em congresso científico. The 3rd Qualitative Research on Mental Health Conference The disabled self: theoretical and empirical approaches to stigma and recovery - 2010

2009 C90) SERPA JR, OTAVIO DOMONT. Mesa Redonda: Esquizofrenia e Senso Comum: uma abordagem na perspectiva da segunda pessoa. Trabalho apresentado em congresso científico. XXVII Congresso Brasileiro de Psiquiatria (São Paulo, outubro 2009). C91) SERPA JR, OTAVIO DOMONT. Trabalho apresentado em congresso científico. O Silêncio na Instituição Psiquiátrica. "As dimensões do Silêncio". Círculo Psicanalítico do Rio de Janeiro (Rio de Janeiro, setembro de 2009). C92) SERPA JR, OTAVIO DOMONT. Conferência: Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário. Trabalho apresentado em congresso científico. Centro de Estudos do Instituto de Psiquiatria da UFRJ (Rio de Janeiro, novembro de 2009). 65

C93) STEFANELLO, S. La Gestion Autonome de la Médication: une intervention et une recherche dans les Services de Santé Publique du Brésil. XVI Colloque de L'Association Québécoise pour la Réadaptation Psychosociale. Faire de la citoyenneté un enjeu majeur pour la recherche et l'action en santé mentale. 2012. Quebéc, Qc. C94) STEFANELLO, S.. Les services de santé mentale de première ligne: différences et convergences entre le Québec et le Brésil. 2013. Séminaire de l'éducation permanete de l'équipe de santé mentale en première ligne du CLSC (Centre Local de Services Communautaires) de Dorval-Lachine et LaSalle. Montreal, Qc. C95) ONOCKO CAMPOS, R; STEFANELLO, S. Le pouvoir de la médication dans les services alternatifs de Santé Mentale. XVI Colloque de L'Association Québécoise pour la Réadaptation Psychosociale. Faire de la citoyenneté un enjeu majeur pour la recherche et l'action en santé mentale. 2012. (Congresso) Quebéc, Qc. C96) Santos, Deivisson Vianna Dantas dos; Stefanello, Sabrina; Onocko Campos, Rosana Tereza. A Gestão Autônoma da Medicação no cotidiano dos Serviços de Saúde. Apresentação de Pôster Congresso de Saúde Pública. REVISTA ESPAÇO PARA A SAÚDE | Londrina | v. 15 | suplemento n. 2 | ago. 2014. ISBN: 1570-7130.

d)

Difusão de Conhecimento sobre a GAM

D1) SILVEIRA, MARÍLIA. Roda de Conversa e oficina GAM no CAPS II de Canoas. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Canoas/RS janeiro/2014. D2) SILVEIRA, MARÍLIA; GUERRA, SANDRA. Roda de Conversa sobre GAM Instituto Psiquiátrico Forense (Manicômio Judiciário). SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS janeiro/2014. D3) SILVEIRA, MARÍLIA. Oficina GAM com estudantes no VER-SUS IJUÌ (Programa Vivências e estágios no SUS – Ministério da Saúde) SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Ijuí/RS fevereiro/2014. D4) SILVEIRA, MARÍLIA. Oficina GAM com estudantes Serviço-escola da Universidade do Vale do Rio dos Sinos (UNISINOS). SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, São Leopoldo/RS fevereiro/2014. D5) SILVEIRA, MARÍLIA; Oficina GAM com trabalhadores da Rede de Atenção Psicossocial de Ijuí. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Ijuí/RS fevereiro/2014. D6) SILVEIRA, MARÍLIA e Equipe de Coordenação estadual de Saúde Mental do RS. Organização do I Encontro regional sobre Protagonismo e Autonomia de Usuários realizado em abril de 2014. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS abril/2014. Reuniu 500 participantes entre usuários, trabalhadores, residentes, alunos de graduação da saúde.

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D7) SILVEIRA, MARÍLIA; SERRANO, Mercedes, BOLIS, Antônio. Oficina GAM com trabalhadores da Rede de Atenção Psicossocial de Santa Cruz/RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Santa Cruz/RS abril/2014 D8) SILVEIRA, MARÍLIA; SERRANO, Mercedes, Oficina GAM com trabalhadores da Rede de Atenção Psicossocial de Palmeira das Missões/RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Palmeira das Missões/RS abril/2014. D9) SILVEIRA, MARÍLIA; SERRANO, Mercedes, BOLIS, Antônio Supervisão; HOFF, Sandra. Supervisão dos grupos GAM com usuários trabalhadores da Rede de Atenção Psicossocial da Região dos Vales. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Bom Retiro do Sul/RS maio/2014. D10) SILVEIRA, MARÍLIA; Apresentação da GAM para trabalhadores da Rede de Atenção Psicossocial da Região Missioneira. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Santa Rosa/RS junho/2014. D11) STEFANELLO, SABRINA; VIANNA, DEIVISSON; BORGES, LUANA. Mini-curso sobre a Gestão Autônoma da Medicação nas redes de Atenção Psicossocial. 1º Congresso da Rede de Atenção Psicossocial do Brasil. Prefeitura Municipal de Curitiba, São Jose dos Pinhais/PR. DATA: 04/12/2013 a 06/12/2013. Publico: 180 pessoas D12) SANTOS, DEIVISSON VIANNA DANTAS. Clinica Ampliada na Estratégia Saude da Família e a Gestão Autônoma de Medicamentos (GAM). Palestra UFMA, São Luis, MA, 2013. Publico de 60 pessoas D13) SANTOS, DEIVISSON VIANNA DANTAS. ‘O Cuidado que Eu preciso' na atenção à crise em Saúde Mental: respeitando a autonomia. Palestra. Secretaria Estadual de Saúde do Rio Grande do Sul, Pelotas, RS, 2013. Publico de 120 pessoas. D14) SANTOS, DEIVISSON VIANNA DANTAS. Projeto Terapêutico Singular: respeitando autonomias. Palestra. Secretaria do Estado do Paraná, Pinhais, PR, 2013. Publico de 40 pessoas. D15) SANTOS, DEIVISSON VIANNA DANTAS. Rede de Cuidados em Saúde Mental no Canada: um comparativo brasileiro. Palestra. UNICAMP, Campinas, SP, 2013. Publico de 20 pessoas. D16) SANTOS, DEIVISSON VIANNA DANTAS. Rede de Cuidados em Saúde Mental no Brasil: um comparativo para o Quebec. Palestra. Centros Locais de Serviços Comunitários (CLSC) de Dorval-Lachine et LaSalle, 7 de março de 2013, Montreal-Qc, Canadá.Publico de 20 pessoas. D17) SILVEIRA, MARÍLIA. Apresentação da GAM para equipe de Gestão Em Saúde Mental do estado do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS, julho/2013. D18) SILVEIRA, MARÍLIA. Apresentação da GAM para trabalhadores do grupo condutor de Saúde Mental da Região Sul. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Pelotas/RS julho/2013.

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D19) SILVEIRA, MARÍLIA. Impressão do Guia GAM. Tiragem 10.000 exemplares. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS julho/2013. D20) SILVEIRA, MARÍLIA. Apresentação da GAM para trabalhadores da Região Carbonífera do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS julho/2013. D21) SILVEIRA, MARÍLIA. Apresentação da GAM no encontro Regional de Capes da Região SerraVales do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Santa Cruz/RS agosto/2013. D22) SILVEIRA, MARÍLIA. Apresentação da GAM no Fórum Regional de Saúde Mental da Região Serra-Vales do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Lajeado/RS agosto/2013. D23) SILVEIRA, MARÍLIA. Apresentação da GAM no Fórum Regional de Coordenadoras de Saúde Mental do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS setembro/2013. D24) SILVEIRA, MARÍLIA. Apresentação da GAM na Faculdades da Serra Gaúcha. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Caxias do Sul/RS setembro/2013. D25) SILVEIRA, MARÍLIA. Apresentação da GAM Fórum de Saúde Mental de Bagé. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Bagé/RS setembro/2013. SILVEIRA, MARÍLIA. Oficina da GAM Encontro de CAPS da Região Missioneira. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Santa Rosa/RS outubro/2013. D26) SILVEIRA, MARÍLIA. Supervisão para início dos grupos GAM na Região dos Vales. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Lajeado/RS outubro/2013. D27) SILVEIRA, MARÍLIA. Apresentação da GAM no encontro de CAPS da região Macrometropolitana e ação de informação e distribuição de Guias GAM. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS novembro/2013. D28) SILVEIRA, MARÍLIA. Oficina GAM para grupo de Geração de Trabalho e Renda de Porto Alegre - GERAPOA. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS novembro/2013. D29) SILVEIRA, MARÍLIA. Oficina GAM com equipe do CAPES II de Santo Afonso. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Novo Hamburgo/RS outubro/2013. D30) SILVEIRA, MARÍLIA. Oficina GAM no Encontro de Redes de Atenção Psicossocial (RAPS) da Região Centro-Oeste e Sul do RS. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Pelotas/RS novembro/2013.

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D31) SILVEIRA, MARÍLIA. Roda de Conversa da GAM 4a Parada Gaúcha do Orgulho Louco. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Alegrete/RS novembro/2013. D32) SILVEIRA, MARÍLIA. Elaboração de material informativo sobre a GAM para os serviços de Atenção Psicossocial. SECRETARIA ESTADUAL DA SAÚDE DO RIO GRANDE DO SUL, Porto Alegre/RS dezembro/2013. D33) Stefanello, S. Disciplina de Seminários Avançados: temática de pesquisa sobre a Gestâo Autônoma da Medicação. Programa de Pós-Graduação em Saúde Coletiva da UFSC. nov/2013 D34) Stefanello, S. Oficina: Em busca de discussões sobre medicamentos psicotrópicos, direitos, "empoderamento" e conhecimento de si - a Estratégia da Gestão Autônoma da Medicação. Programa de Pós-Graduação em Saúde Coletiva da UFSC (convite aberto às equipes do SUS Florianópolis). nov/2013 4h/aula. e)

Book Chapters

2014 E1) MEDEIROS, R.G.; PALOMBINI, A.L. Entre prescrições e ilicitudes, promovendo saúde mental: uma análise das contribuições da pesquisa Gestão Autônoma da Medicação (GAM). In: DALMOLIN, B.M.; DORING, M. (orgs.). Crack e outras drogas. Múltiplas facetas do cuidado em saúde mental. Passo Fundo: UPF, 2014. (no prelo) E2) RENAULT L, Passos E, Eirado A. Da entrevista de explicitação à entrevista enativa. In: Amador F, Barros B, Fonseca TG. Clínicas do Trabalho, Clínica dos Afectos, 2014 (no prelo). E3) Rodrigues, Sandro Eduardo. Experiências psicotrópicas proscritas: o fora-eixo. Em: LOPES, Lucília Elias; BATISTA, Vera Malaguti. Atendendo na guerra: dilemas médicos e jurídicos sobre o "crack". Rio de Janeiro: Revan, 2014 (pp. 127-188). 2013 E4) JORGE, M. S. B.; Onocko-Campos, R.; Cavalcante, C.M.; Vascon celos, Mardenia Gomes Ferreira; Lima, L. L.; Carvalho, R. R. S.. Concepções teóricas de análise de narrativas como foco na estratégia gestão autônoma de medicação (GAM) no contexto da pesquisa. In: Jorge, M.S.B.; Silva, R. M.; CATRIB, A. M. F.. (Org.). A Transversalidade Epistemológica da Saúde Coletiva: saberes e práticas.. 1ed.Fortaleza: EdUECE, 2013, v. , p. 315-333. E5) BACCARI, I. O. P. . Paradigmas e trabalhos epistemológicos: ensaio sobre tolerância e discernimento. In: JORGE, Maria Salete Bessa. (Org.). A Transversalidade Epistemiológica da Saúde Coletiva: Saberes e Práticas. 1ed.Fortaleza: EdUECE, 2013, v. , p. 100-.120.

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2011

E6) GAMA, Carlos Alberto Pegolo da ; CAMPOS, R. O. ; MIRANDA,L. ; Ferrer, A.L. ; Gonçalves, L. ; Trape, T. L. ; Diaz, A.R. . Inovações para o estudo e produção de consensos - Além do Delphi. In: Rosana Onocko Campos; Juarez Pereira Furtado. (Org.). Desafios da avaliação de programas e serviços em saúde. Campinas: Editora da Unicamp, 2011, v. 1, p. 97-119.

2009

E7) EIRADO A, Passos E. Cartografia como dissolução do ponto de vista do observador. In: Passos E, Kastrup V, Escóssia L (org). Pistas do Método da cartografia: Pesquisa-intervenção e produção de subjetividade. Porto Alegre: Ed. Sulina, 2009. E8) GAMA, Carlos Alberto Pegolo. Saúde Mental na Atençao Primária - Desafios e Práticas. In: Anice Holanda; elisa Zaneratto Rosa; Maria Cristina Barbosa Veras, Aparecida Rosângela Silveira;Jereuda Duarte Guerra; Clara Goldman Ribemboim. (Org.). A prática da Psicologia e o Núcleo de Apoio à Saúde da Família. 1a ed. Brasília: Conselho Federal de Psicologia, 2009, v. , p. 103-110. F)

Theses

PÓS-DOCTORATE DEGREE F1) Stefanello, Sabrina. Grupos GAM como instrumento de educação para reconhecimento da autonomia do usuário de saúde mental: efeitos nos residentes e aprimorandos de cursos de especialização. 2014. Orientadora: Rosana Teresa Onocko Campos Instituição: Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: trabalho de pós-doutorado. UNICAMP: Programa de Pós-Graduação em Saúde Coletiva F2) Gonçalves, Laura Lamas Martins. 2014. A construção do Guia do Moderador dos Grupos de Gestão Autônoma da Medicação (GAM) – um complemento ao Guia GAM-BR. Instituição: Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: trabalho de pósdoutorado. UNICAMP: Programa de Pós-Graduação em Saúde Coletiva Pós doutorado concluído em abril de 2014. Orientação: Rosana Teresa Onocko Campos F3) Jorge, Maria Salete Bessa. Medicação, autonomia e cidadania no campo da saúde mental: validação do Guia de Gestão Autônoma da Medicação (GAM) no Ceará. Orientadora: Rosana Teresa Onocko Campos Instituição: Universidade Estadual de Campinas. Faculdade de Ciências Médicas. Nível: trabalho de pós-doutorado. UNICAMP: Programa de Pós-Graduação em Saúde Coletiva F4) Xavier, Maria Angélica Zamora. Construções narrativas nos CAPs: Analises de processos de subjetivação a partir do GGAM. Pós-doutorado concluído em 2013. Orientadora: Analice Palombini 70

– Programa de Pós- Graduação em Psicologia Social e Institucional. Universidade Federal do Rio Grande do Sul.

DOCTORATE DEGREE (PhD) In progress: F5) Barros, Letícia Maria Renault de. A Análise em uma Pesquisa qualitativa, avaliativa e participativa: contribuições da abordagem enativa. Início: 2011. Orientador: Eduardo Passos. Tese (Doutorado em Programa de Pós-Graduação em Psicologia) - Universidade Federal Fluminense. Em andamento. F6) Cervo, Michele da Rocha. O que dizem as crianças: infâncias, saúde mental e a experiência GAM. Início: 2014. Orientadora Analice de Lima Palombini. Tese (Doutorado em Programa de PósGraduação em Psicologia) - Universidade Federal do Rio Grande do Sul. Início: 2014 Em andamento. F7) Emerich, Bruno Ferrari. Análise e compreensão do “Guia de Boas Práticas/Diretrizes para Desinstitucionalização”: construção de conhecimento a partir do diálogo entre teoria e prática.. Orientador: Rosana Teresa Onocko Campos Instituição: Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: tese (doutorado). UNICAMP: Programa de Pós-Graduação em Saúde Coletiva. Tese de doutorado. Início: 2012. Em andamento. F8) Melo, Jorge. A Narrativa Como Espaço de Invenção Coletiva: Traçando Indicações TeóricoMetodológicas para a utilização do Método Narrativo na Pesquisa Avaliativa Qualitativa e Participativa em Saúde. Início: 2011. Orientador: Eduardo Passos. Tese (Doutorado em Programa de Pós-Graduação em Psicologia) - Universidade Federal Fluminense. Em andamento. F9) Silveira, Marília. Da pesquisa à gestão, caminhos paralelos e ruas transversais na implantação da GAM como política pública. Início: 2013. Orientadora Marcia Moraes. Tese (Doutorado em Programa de Pós-Graduação em Psicologia) - Universidade Federal Fluminense. Início: 2013 Em andamento. F10) Surjus, Luciana Togni de Lima e Silva. Deficiência Intelectual e Transtorno Mental: quando a fronteira vira território. Doutorado em andamento em Saúde Coletiva. Orientador: Rosana Onocko Campos. Universidade Estadual de Campinas, UNICAMP, Brasil. Início: 2011. Bolsista do(a): International Development Desearch Center. F11) Trapé, Thiago Lavras. Saúde Mental em Rede. Início: 2014. Doutorado em andamento em Saúde Coletiva (Conceito CAPES 5). Universidade Estadual de Campinas, UNICAMP, Brasil. Com período sanduíche em Consorci de Salut i Social de Catalunya (Orientador: Maria Luisa Navarrete Vazquez). Orientador: Rosana Onocko Campos. Concluded in 2014 71

F12) Rodrigues, Sandro Eduardo. Modulações de sentidos na experiência psicodélica: saúde mental e gestão autônoma de psicotrópicos lícitos e ilícitos. Orientador: Eduardo Passos. Programa de Pósgraduação em Psicologia da Universidade Federal Fluminense. Tese de Doutorado, 2014. Acesso Livre quando homologada: http://www.slab.uff.br/index.php/producao F13) Santos, Deivisson Vianna Dantas. A Gestão Autônoma da Medicação: da prescrição à escuta. Ano de obtenção: 2014. Orientador: Rosana Teresa Onocko Campos. Mestrado em Saúde Coletiva. Universidade Estadual de Campinas, UNICAMP, Campinas, Brasil. com período sanduíche em Université de Montreal (Orientador : Lourdes Maria Rodriguez del Barrio). Acesso Livre quando homologada: http://www.bibliotecadigital.unicamp.br/

Concluded in 2013

F14) Diaz, Alberto Rodolfo Manuel Giovanello. A Atenção à crise e a rede de serviços públicos de saúde mental. Orientador: Rosana Teresa Onocko Campos. Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Tese Doutorado. UNICAMP: Programa de Pós-Graduação em Saúde Coletiva 2013. Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000914636&opt=4 F15) Gonçalves, Laura Lamas Martins. A gestão autônoma da medicação numa experiência com usuários militantes da saúde mental. Orientação: Rosana Teresa Onocko Campos. Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: Tese (doutorado). UNICAMP: Programa de Pós-Graduação em Saúde Coletiva 2013. Link: http://www.bibliotecadigital.unicamp.br/document/?code=000908438&fd=y F16) Pinto, Antônio Germane Alves. Transversalidade da clínica na atenção à saúde: limitações políticas, fragilidades assistenciais e vínculos comunitários na Estratégia Saúde da Família. Orientador: Maria Salete Bessa Jorge. Doutorado em Saúde Coletiva. Universidade Estadual do Ceará, UECE, Brasil. Ano de obtenção: 2013. http://www.saudecoletiva.ufc.br/html/70274becd1/DOUTORADO-2013/Pj-0.html

Concluded in 2012

F17) Ferrer, Ana Luiza. A Saúde Mental na Atenção Básica sob a perspectiva de trabalhadores e usuários dos serviços: um estudo hermenêutico-narrativo sobre os processos de acolhimento, vínculo e responsabilização. Orientador: Rosana Teresa Onocko Campos. Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: Dissertação (doutorado). UNICAMP: Programa de PósGraduação em Saúde Coletiva, 2012 Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000851379&opt=4 72

F18) GAMA, Carlos Alberto Pegolo da (2011). Santé mentale en soins primaires: Les relations entre le territoire et de la subjectivité, thèse de doctorat en médecine réventive et sociale, Orientador: Rosana Teresa Onocko Campos. Universidade Estadual de Campinas . Faculdade de Ciências Médicas. Nível: Dissertação (doutorado). UNICAMP: Programa de Pós-Graduação em Saúde Coletiva, 2012 Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000785005&opt=4 MASTER’S DEGREE In progress: F19) Baccari, Ivana Oliveira Preto. O Texto Narrativo na Pesquisa Qualitativa em Saúde: referencial metodológico e instrumental. Orientação: Profa. Dra. Rosana Onocko Campos. Bolsa CAPES. Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. Mestrado em Andamento. F20) Borges, Luana Ribeiro. SAÚDE MENTAL NA ATENÇÃO BÁSICA: a gestão autônoma de medicamentos psicotrópicos como estratégia de desmedicalização junto aos trabalhadores. Início: 2012. Orientador: Rosana Teresa Onocko Campos. Mestrado em andamento em Saúde Coletiva (Conceito CAPES 5). Universidade Estadual de Campinas, UNICAMP, Brasil. F21) Costa, Igor da. Mestrado em andamento Orientador: Juarez Pereira Furtado. Mestrado em andamento em Políticas Públicas e Saúde Coletiva. Universidade Federal de São Paulo. F22) Ricci, Ellen Cristina. Cotidiano esquizofrenia: Narrativas de usuários de Centros de Atenção Psicossocial (CAPS) a partir das experiências de adoecimento Início: 2013. Mestrado em Saúde Coletiva. Orientadora: Erotildes Maria Leal - Faculdade de Ciências Médicas da UNICAMP. Em andamento F23) Guerini, Lorena. Apoio Institucional na estratégia GAM: um dispositivo clínico-político. Início: 2014 Orientação: Eduardo Passos. Mestrado em Psicologia – Universidade Federal Fluminense. Concluded in 2014 F24) Zanchet, Lívia. Diálogos com a cidade - uma intervenção urbana a partir da experiência com o Guia GAM-BR, 2014. Dissertação (Mestrado) Orientadora: Analice Palombini. Psicologia Social e Institucional - Universidade Federal do Rio Grande do Sul. Acesso Livre: http://www.lume.ufrgs.br/handle/10183/77926 Concluded in 2013 F25) Bezerra, Indara Cavalcante. Uso de psicofármacos na atenção psicossocial: sujeito, autonomia e corresponsabilização. Orientador: Maria Salete Bessa Jorge. Mestrado em Saúde Pública. Universidade Estadual do Ceará, UECE, Brasil. Ano de Obtenção: 2013. http://www.saudecoletiva.ufc.br/html/70274becd1/DOUTORADO-2013/Pj-0.html 73

F26) Maciel, Ana Paula Pessoa. Utilização de psicofármacos em crianças nos centros de apoio psicossocial infantojuvenil de Fortaleza. Orientador: Ana Paula Soares Gondim. Mestrado em Ciências Farmacêuticas. Universidade Federal do Ceará, UFC, Brasil. Ano de Obtenção: 2013. http://www.biblioteca.ufc.br/index.php?option=com_content&task=view&id=294&Itemid=65 F27) Medeiros, Rafael Gil. A pesquisa da Gestão Autônoma da Medicação no contexto de um Capsad, 2013. Orientador: Analice Palombini. Psicologia Social e Institucional - Universidade Federal do Rio Grande do Sul. Acesso livre quando homologada: http://www.lume.ufrgs.br/handle/10183/1 F28) Pereira, Mariana Barbosa. Insight na perspectiva de indivíduos diagnosticados com esquizofrenia em tratamento em Centro de Atenção Psicossocial. Um estudo de narrativas de experiências de adoecimento. Orientadora: Erotildes Maria Leal Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. 2013 Campinas, SP. Acesso livre: http://www.fcm.unicamp.br/fcm/sites/default/files/dissertacao_mariana_pereira_0.pdf F29) Presotto, Rodrigo Fernando. Participação de usuários de serviços de saúde mental em pesquisas: um olhar a partir dos conceitos de empowerment e recovery. Orientação: Rosana Teresa Onocko Campos. Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. 2013 Campinas, SP. Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000903077&opt=4 F30) Silveira, Marília. Vozes no corpo, territórios na mão: loucura corpo e escrita no PesquisarCOM. Porto Alegre, 2013. 134 f. Dissertação (Mestrado em Psicologia Social e Institucional) – Orientado: Analice Palombini. Programa de Pós Graduação em Psicologia Social e Institucional, Instituto de Psicologia, Universidade Federal do Rio Grande do Sul, Porto Alegre, 2013. Acesso Livre: http://www.lume.ufrgs.br/handle/10183/77926 Concluded in 2012 F31) Carvalho, Igho Leonardo do Nascimento. Uso de Psicofármacos em Adolescentes Atendidos pelos Centros de Atenção Psicossocial Infanto-Juvenil de Fortaleza (CE), Orientador: Ana Paula Soares Gondim. Mestrado em Saúde Coletiva. Universidade de Fortaleza, UNIFOR, Brasil. Ano de Obtenção: 2012. Acesso livre: http://uolp.unifor.br/oul/ObraBdtdSiteNs.do?method=listar F32) Dahl, Catarina Magalhães. Experiência, Narrativa e Intersubjetividade: O processo de restabelecimento na perspectiva de pessoas com o diagnóstico de esquizofrenia em tratamento nos Centros de Atenção Psicossocial. Orientadora: Erotildes M Leal. Dissertação (mestrado) Universidade Estadual de Campinas . Faculdade de Ciências Médicas. UNICAMP: Programa de Pós-Graduação em Saúde Coletiva 2012 Campinas. Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000872479&opt=4 F33) Emerich, Bruno Ferrari Direitos dos usuários em intenso sofrimento psíquico, na perspectiva dos usuários e dos gestores de CAPS. Orientação: Rosana Teresa Onocko Campos. Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. 74

Faculdade de Ciências Médicas. 2012 Campinas, SP. Acesso http://www.fcm.unicamp.br/fcm/sites/default/files/dissertacao_bruno_emerich_0.pdf

livre:

F34) Marques, Cecília de Castro. Entre nós: sobre mudar de lugar e produzir diferenças, 2012. Orientadora: Analice Palombini. Psicologia Social e Institucional - Universidade Federal do Rio Grande do Sul. Acesso livre: http://www.lume.ufrgs.br/handle/10183/70045 F35) Pôrto, Karime da Fonseca. Elementos para uma política de avaliação das ações de saúde mental na atenção primária : contribuições de uma pesquisa qualitativa avaliativa. Orientação: Rosana Teresa Onocko Campos. Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. 2012 Campinas, SP. Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000858343&opt=4 F36) Ramos, Júlia Florêncio Carvalho. A autonomia como um problema: uma pesquisa a partir da realização do dispositivo GAM em um CAPS fluminense, 2012. 119 f. Orientador: Eduardo Passos. Dissertação (Mestrado) – Universidade Federal Fluminense, Instituto de Ciências Humanas e Filosofia, Departamento de Psicologia, 2012. Acesso Livre: http://www.slab.uff.br/images/Aqruivos/dissertacoes/2012/d_2012Julia.pdf Concluded in 2011 F37) Lopes. Tatiana Scala. Experiências e narrativas de psiquiatras trabalhadores de serviços públicos de saúde mental sobre a prática de cuidado da esquizofrenia. Orientador: Erotildes Maria Leal. Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. 2011 . Acesso Livre: http://www.bibliotecadigital.unicamp.br/document/?code=000791211&opt=4 F38) Otanari, Thais Mikie de Carvalho. A experiência de participação dos residentes de psiquiatria e saúde mental nos grupos De Gestão Autônoma Da Medicação (GAM): possíveis efeitos na formação. Orientador: Erotildes Maria Leal. Dissertação (mestrado) Programa de Pós-Graduação em Saúde Coletiva. Universidade Estadual de Campinas. Faculdade de Ciências Médicas. 2011 Campinas, SP. Acesso livre: http://www.bibliotecadigital.unicamp.br/document/?code=000794670&opt=3 F39) Sales, André Luis Leite de Figueirêdo . Competências dos agentes comunitários de saúde no processo de desinstitucionalização da loucura. Orientadora; Simone Mainiere Paulon. Dissertação (Mestrado) Programa de Pós-graduação em Psicologia Social e Institucional. Universidade Federal do Rio Grande do Sul. 2011. Acesso livre: http://www.lume.ufrgs.br/handle/10183/55419

LATO SENSU POST-GRADUATION

F40) MUHAMMED, Adriana Hashem Narrativa-crítica do grupo de intervenção: Gestão Autônoma da Medicação. Orientadora: Analice de Lima Palombini. Trabalho de Conclusão do Curso de 75

Especialização em Educação em Saúde Mental Coletiva, Porto Alegre, UFRGS, 2010. Acesso Livre: http://hdl.handle.net/10183/29928

GRADUATION FINAL PAPERS

F41) Baccari, Ivana Oliveira Preto. Trabalho de Conclusão de Curso: Recovery: evolução de um conceito. Orientadora: Rosana Onocko Campos. Grupo interfaces Unicamp/SP F42) Milward, Paula. Experiência de autonomia compartilhada na saúde mental: o “manejo cogestivo” na Gestão Autônoma da Medicação. Trabalho de conclusão de curso, submetido sob forma de artigo à revista Pesquisas e Práticas Psicossociais. Orientador: Eduardo Passos. Graduação em Psicologia UFF.

g)

Websites, social media, multimedia

G1) Onocko Campos, Rosana. Como anda a Reforma Psiquiátrica? http://www6.ensp.fiocruz.br/radis/revista-radis/38/reportagens/como-anda-reforma-psiquiatrica Outubro/2005 G2) Seminário da pesquisa de CAPS - Seminário faz avaliação de programas de saúde http://www.unicamp.br/unicamp/noticias/seminário-faz-avaliação-de-programas-de-saúde-0 26/04/2006 G3) Evento discute estratégias de intervenção territorial e cultural na saúde mental http://www.ensp.fiocruz.br/portal-ensp/informe/site/materia/detalhe/18571 06/10/2009 G4) Notícia sobre aprovação do projeto ARUCI Brasil- Canadá http://www.unicamp.br/unicamp/noticias/projeto-sobre-saúde-mental-e-cidadania-da-fcm-vence120-concorrentes-internacionais 28/04/2010 G5) Lançamento ARUCI http://www.fcm.unicamp.br/fcm/eventos/2014/seminario-internacional-de-lancamento-do-projetoaruc?language=pt-br 14/04/2010 G6) Site ARUCI http://www.aruci-smc.org/pt/ G7) Guia GAM e Guia do Moderador para download 76

http://www.fcm.unicamp.br/fcm/laboratorio-saude-coletiva-e-saude-mental-interfaces G8) Site do Projeto A Voz dos Usuários: http://ltc-ead.nutes.ufrj.br/vozdosusuarios/ G9) Facebook do Projeto A Voz dos Usuários: http://www.facebook.com/avozdosusuarios?fref=ts G10) Diário da viagem do Comitê Cidadão Brasileiro ao Quebéc http://diariodebordodeunsloucos.blogspot.com.br/ G11) A viagem continua... Vídeo-documentário da viagem do Comitê Cidadão Brasileiro ao Quebéc http://www.youtube.com/watch?v=30k4Ee52PLk&feature=youtu.be G12) A Vida da Gente como Agente: notas para o trabalho dos Agentes Comunitários http://www.fcm.unicamp.br/fcm/laboratorio-saude-coletiva-e-saude-mental-interfaces G13) Associação de Familiares, Amigos e Usuários da Saúde Mental de São Pedro da Aldeia (ASSAMESPA): http://assamespa.blogspot.com.br/ G14) Manifesto do Movimento “Campinas contra a privatização” http://susbrasil.net/2011/02/27/manifesto-do-movimento-campinas-contra-a-privatizacao/ 27/02/2011 G15) Sandra Maria Hoff falou sobre a importância das passagens gratuitas para usuários do CAPS. http://www.flickr.com/photos/camaramunicipaldenovohamburgo/5515457191/?rb=1 10/03/2011 G16) Usuários dos CAPs pedem passagens gratuitas http://www.camaranh.rs.gov.br/Noticias.asp?IdNoticia=4595 10/03/2011 G17) Unicamp e Unifesp realizam seminário sobre indicadores de avaliação de saúde mental http://www.fcm.unicamp.br/fcm/noticias/2014/unicamp-e-unifesp-realizam-seminario-sobreindicadores-de-avaliacao-de-saude-mental 02/12/2011 G18) Falta de remédios e passagens http://blogdonandosantos.blogspot.com.br/2012/04/falta-de-remedios-e-passagens_29.html 29/03/2012 G19) Pronunciamento da Sra. Sandra Maria Schmitz Hoff, usuária do CAPS – Centro http://portal.camaranh.rs.gov.br/processos-legislativos/pronunciamentos-1/abril-1/24-04-2012pronunciamento-da-sra-sandra-maria-schmitz-hoff-usuaria-do-caps-2013-centro 24/04/2012 G20) Câmara aprova ações que qualificam a saúde – Participação de Sandra Hoff http://issuu.com/camaranh/docs/jonnal_cn_26/7 Maio/2012 77

G21) Pacientes com transtornos mentais tomam remédios em excesso http://www.redebrasilatual.com.br/saude/2012/06/transtornos-mentais-sao-tratados-comhipermedicacao 20/06/2012 G22) Lançamento do Guia GAM impresso pela Secretaria Estadual de Saúde do RS http://www.ufrgs.br/ufrgs/noticias/ufrgs-participa-de-lancamento-de-guia-de-medicacao 19/03/2013 G23) De 18 a 20 de outubro, Campinas sedia IV Encontro Estadual da Luta Antimanicomial http://www.sinpsi.org/noticias.php?id=2964 17/10/2013 G24) I Encontro Estadual sobre Protagonismo e Autonomia do RS – Organizado pela Secretaria Estadual de Saúde do RS http://www.saude.rs.gov.br/conteudo/8193/?Encontro_discute_autonomia_e_protagonismo_de_usu %C3%A1rios_de_Sa%C3%BAde_Mental 21/03/2014 G25) Campinas, Araras e Região lançam Núcleo da Frente Antimanicomial http://saudeecosol.org/wp-content/uploads/2013/06/Pag-042.pdf MARÇO/2013 G26) GUIA DA GESTÃO AUTÔNOMA DA MEDICAÇÃO, "GUIA GAM" http://www.redehumanizasus.net/83728-download-o-guia-da-gestao-autonoma-da-medicacao-guiagam 23/04/2014 G27) RESISTE CAMPINAS http://www.fcm.unicamp.br/fcm/sites/default/files/images/user2/cartaz_resiste_campinas_sem_o_ap oio_do_vereador.jpg 30/04/2013 G28) A saúde mental de Campinas: resistência e potência de ação coletiva http://www.pedrotourinho.com.br/2013/05/a-saude-mental-de-campinas-resistencia-e-potencia-deacao-coletiva/ 01/05/2013 G29) Marcha da Luta Antimanicomial de Campinas – Saúde Mental e Direitos Humanos (#viversemamarras #loucosporliberdade) http://antimanicomialsp.wordpress.com/2014/05/10/marcha-da-luta-antimanicomial-de-campinassaude-mental-e-direitos-humanos-viversemamarras-loucosporliberdade/ 10/05/2014 G30) RESISTE CAMPINAS II - RESISTIR PARA TRANSFORMAR: A REDE DE CUIDADO QUE QUEREMOS! http://www.redehumanizasus.net/84196-resiste-campinas-ii-resistir-para-transformar-a-rede-decuidado-que-queremos 14/05/2014 78

G31) Conceito internacional sobre reabilitação psicossocial é tema simpósio na FCM até quartafeira (21) http://www.fcm.unicamp.br/fcm/noticias/2014/conceito%20sobre-reabilitacao-psicossocial-e-temasimposio-na-fcm 19/05/2014 G32) Unicamp e Universidade de Montreal mostram resultados de cinco anos de pesquisas em Saúde Mental http://www.fcm.unicamp.br/fcm/noticias/2014/unicamp-e-universidade-de-montreal-mostramresultados-de-cinco-anos-de-pesquisas-em-saude-mental 22/05/2014 j)

Media coverage (Articles in local or international media)

J1) Palombini, Analice de Lima. Clínica e Política Boletim de notícias do Conselho Regional de Psicologia do Rio Grande do Sul. http://www.crprs.org.br/noticias_internas.php?idNoticia=1163 14/12/2010 J2) Onocko Campos, Rosana. Saúde Mental em Campinas http://www.fcm.unicamp.br/fcm/sites/default/files/editorial_rosana_correio.jpg Jornal Correio Popular de Campinas-SP, publicado em 03/06/2012. J3) Entrevista que a Profª. Drª Rosana Onocko Campos concedeu via e-mail, à Revista IHU OnLine, tecendo considerações sobre a reforma psiquiátrica no Brasil O empoderamento dos usuários de saúde mental | Revista IHU Online #391. Nº 391, Ano XII, publicado em 07/05/2012. J4) Entrevista que a Profª. DrªRosana Onocko Campos concedeu ao Jornal da Unicamp. Pesquisas revelam hipermedicação de pacientes com transtorno mental. http://www.fcm.unicamp.br/fcm/sites/default/files/materia_rosana_jornal_da_unicamp.pdf -, publicado em 18/06/2012. J5) Onocko Campos, Rosana; Palombini, Analice. Entrevista em rádio. MÍDIA: Rádio da UFRGS. 2013. J6) Palombini, Analice; Fagundes, Sandra. Entrevista em programa de TV. MÍDIA: Programa Cidadania da TVE. 2013 J7) Entrevista Rosana Onocko. Rosana Onocko-Campos fala sobre estudos qualitativos como ferramenta de pesquisa no campo da Saúde Mental http://www.abrasco.org.br/site/2013/10/rosana-onocko-campos-fala-sobre-estudos-qualitativoscomo-ferramenta-de-pesquisa-no-campo-da-saude-mental/ 09/10/2013 J8) Onocko Campos, Rosana. Isolar doente mental não é uma atitude sã. http://www.ufrgs.br/ufrgs/noticias/ufrgs-participa-de-lancamento-de-guia-de-medicacao Artigo o Jornal O Globo, publicado em 04/03/2014.

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k) Attendance at political advocacy events K1) NASCIMENTO, NS. Participação na 6ª Conferência Estadual de Saúde, de 31/ago a 02/set de 2011, 24 horas. Org. Conselho Estadual de Saúde, SUS, Secretaria de Saúde, Governo de São Paulo. K2) NASCIMENTO, NS. Participação no I Fórum de Debates Sobre Saúde Pública na RMC, em 12/ago de 2011, local PUC II Campinas. Org. Deputada Estadual Ana Perugi. K3) NASCIMENTO, NS. Participação na II Conferência Municipal de Saúde Mental de Várzea Paulista, em 06/abr de 2011, 8 horas, local Várzea Paulista/SP. Org. SUS e Secretaria Municipal de Saúde de Várzea Paulista. K4) NASCIMENTO, NS. Participação da IX Conferência Municipal de Saúde de Campinas, de 20/mai a 22/mai de 2011. Org. SUS, Conselho Municipal de Saúde e Secretaria Municipal de Saúde de Campinas/SP. K5) NASCIMENTO, NS. Palestrante na mesa-redonda: Rede Substitutiva Antimanicomial – Serviços Substitutivos e Cuidados em Saúde Mental, em 02/jun de 2011. Org. Coletivo 18 de Maio, São Carlos/SP. K6) SANTOS, ES. Participação como delegado usuário do III Encontro Nacional de Comitês em Ética em Pesquisa – ENCEP, de 17 a 19 de junho de 2010, carga horária 21h. São Paulo. Org. Conselho Nacional de Saúde, SUS, Ministério da Saúde e Governo Federal. K7) STEFANELLO, S. Roda de Conversa do Departamento de Saúde Mental da Secretaria Municipal de Saúde de Curitiba. A Rede de Atenção Psicossocial como Espaço de Formação: a Clínica da Reforma Psiquiátrica. 2014.

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Mental Health and Citizenship

Mental Health and Citizenship IDRC Project Number: 104518-014 Country/Region: Brazil (São Paulo, Rio de Janeiro, Bahia, Ceará, Rio Grande do Sul) and ...

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